Politician(s) lobbied: Michael Collins (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Jim O'Callaghan (Minister), Department of Justice; Nicole Ryan (Senator), Seanad; Peter Roche (TD), Dáil Éireann, the Oireachtas; Manus Boyle (Senator), Seanad; Evanne Ní Chuilinn (Senator), Seanad; Catherine Callaghan (TD), Dáil Éireann, the Oireachtas; Brian Brennan (TD), Dáil Éireann, the Oireachtas; Paula Butterly (TD), Dáil Éireann, the Oireachtas; Nikki Bradley (Senator), Seanad; Martin Daly (TD), Dáil Éireann, the Oireachtas; Cynthia Ní Mhurchú (MEP), European Parliament; Billy Kelleher (MEP), European Parliament; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas
Intent: Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Methods: EmailMeeting
Details by Method
Email
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Meeting
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Politician(s) lobbied: Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Nicole Ryan (Senator), Seanad; David Cullinane (TD), Dáil Éireann, the Oireachtas; Peter Roche (TD), Dáil Éireann, the Oireachtas; Manus Boyle (Senator), Seanad; Catherine Callaghan (TD), Dáil Éireann, the Oireachtas; Brian Brennan (TD), Dáil Éireann, the Oireachtas; Paula Butterly (TD), Dáil Éireann, the Oireachtas; Linda Nelson Murray (Senator), Seanad; Teresa Costello (Senator), Seanad; Albert Dolan (TD), Dáil Éireann, the Oireachtas
Intent: Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Methods: EmailMeeting
Details by Method
Email
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Meeting
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Politician(s) lobbied: James O'Connor (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Cynthia Ní Mhurchú (MEP), European Parliament; Barry Cowen (MEP), European Parliament; Mary Rose Desmond (Councillor), Cork City Council; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Deirdre Gillane (Chief of Staff), Department of the Taoiseach; Paschal Donohoe (Minister), Department of Finance; Fiona O'Connor (Special Adviser), Department of Finance; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Laura Mannion (Special Advisor), Department of Enterprise, Trade and Employment; Colm Burke (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Shay Brennan (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Pat Casey (Senator), Seanad; Maria Byrne (Senator), Seanad; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; John Shaw (Assistant Secretary), Department of the Taoiseach
Intent: Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Methods: EmailLetterMeetingPhone callVirtual Meeting
Details by Method
Email
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Letter
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Meeting
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Phone call
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Virtual Meeting
Raising awareness about rare disease policy in Ireland and the EU and improving access to treatments for rare disease patients
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Noel McCarthy (TD), Dáil Éireann, the Oireachtas; Seamus McGrath (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Paula Butterly (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Gillian Toole (TD), Dáil Éireann, the Oireachtas; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; James Geoghegan (TD), Dáil Éireann, the Oireachtas; Maeve O'Connell (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Nikki Bradley (Senator), Seanad; Stephen Foley (Special Adviser), Department of Health; Jennifer Carroll MacNeill (TD), Dáil Éireann, the Oireachtas; Seán Kelly (MEP), European Parliament; Billy Kelleher (MEP), European Parliament; Cynthia Ní Mhurchú (MEP), European Parliament; Michael McNamara (MEP), European Parliament; Kathleen Funchion (MEP), European Parliament; Barry Cowen (MEP), European Parliament; Regina Doherty (MEP), European Parliament; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Deirdre Gillane (Chief of Staff), Department of the Taoiseach; John Paul O'Shea (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Mary Butler (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Joe Lynch (Councillor), Cork City Council; Mary Rose Desmond (Councillor), Cork City Council; James O'Connor (TD), Dáil Éireann, the Oireachtas; Michael Moynihan (TD), Dáil Éireann, the Oireachtas
Intent: Awareness raising and improving access to treatments for people with rare diseases.
Methods: EmailMeetingVirtual Meeting
Details by Method
Email
Raising awareness about rare disease policy in Ireland.
Meeting
Raising awareness about rare disease policy in Ireland.
Virtual Meeting
Raising awareness about rare disease policy in Ireland.
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Colm Burke (Minister of State), Department of Health; Billy Kelleher (MEP), European Parliament; Seán Kelly (MEP), European Parliament; Jennifer Carroll MacNeill (Minister of State), Department of the Taoiseach; Stephen Foley (Adviser to Minister), Department of Defence; John Lahart (TD), Dáil Éireann, the Oireachtas; Nikki Bradley (Senator), Seanad; Shane O'Callaghan (Councillor), Cork City Council; Úna McCarthy (Councillor), Cork County Council; Micheál Martin (Tánaiste and Minister), Department of Foreign Affairs; Deirdre Gillane (Chief of Staff), Department of the Taoiseach; Helen McEntee (Minister), Department of Justice; Patrick Cluskey (Special Adviser), Department of Justice; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Fiona O'Connor (Special Adviser), Department of Public Expenditure, NDP Delivery and Reform; Ferghal Blaney (Special Adviser), Department of Environment, Climate and Communications; James Lawless (Minister of State), Department of Environment, Climate and Communications; Jack Chambers (Minister), Department of Finance; Sam Griffin (Adviser to Minister), Department of Finance; Shane Smyth (Adviser to Minister), Department of Finance; Mary Butler (Minister of State), Department of Health; Erin McGreehan (Senator), Seanad; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Jerry Buttimer (Senator), Seanad; Seamus McGrath (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Michael McNamara (MEP), European Parliament; Cynthia Ní Mhurchú (MEP), European Parliament; Barry Andrews (MEP), European Parliament; Cáit Moran (Deputy Permanent Representative of Ireland to the European Union), Department of Foreign Affairs; Corona Joyce (Adviser to Minister of State), Department of Health
Intent: Raising awareness about rare disease policy in Ireland in Ireland and the EU and improving access to treatments for rare disease patients
Methods: EmailMeetingVirtual Meeting
Details by Method
Email
Raising awareness about rare disease policy in Ireland in Ireland and the EU and improving access to treatments for rare disease patients
Meeting
Raising awareness about rare disease policy in Ireland in Ireland and the EU and improving access to treatments for rare disease patients
Virtual Meeting
Raising awareness about rare disease policy in Ireland in Ireland and the EU and improving access to treatments for rare disease patients
Politician(s) lobbied: Peter Burke (Minister), Department of Enterprise, Trade and Employment; Laura Mannion (Special Advisor), Department of Enterprise, Trade and Employment; Pauline Mulligan (Assistant Secretary), Department of Enterprise, Trade and Employment
Intent: To discuss points of relevance to BioMarin's business operations in Ireland
Methods: EmailMeeting
Details by Method
Email
To discuss points of relevance to BioMarin's business operations in Ireland
Meeting
To discuss points of relevance to BioMarin's business operations in Ireland
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Cathal Berry (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Simon Harris (An Taoiseach), Department of the Taoiseach; Matthew Lynch (Special Adviser), Department of the Taoiseach; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Colm Burke (Minister of State), Department of Health; Billy Kelleher (MEP), European Parliament; Regina Doherty (MEP), European Parliament; Aodhán Ó Ríordáin (MEP), European Parliament; Seán Kelly (MEP), European Parliament; Jennifer Carroll MacNeill (Minister of State), Department of the Taoiseach; Stephen Donnelly (Minister), Department of Health; Susan Mitchell (Special Adviser), Department of Health; Stephen Foley (Adviser to Minister), Department of Defence
Intent: Awareness raising and improving access to treatments for people with rare diseases
Methods: EmailMeetingPhone callVirtual Meeting
Details by Method
Email
Raising awareness about rare disease policy in Ireland and the EU
Meeting
Raising awareness about rare disease policy in Ireland
Phone call
Raising awareness about rare disease policy in Ireland
Virtual Meeting
Raising awareness about rare disease policy in Ireland
Politician(s) lobbied: Pat McParland (Deputy Chief of Staff), Department of the Taoiseach; Deirdre Gillane (Chief of Staff), Department of the Taoiseach; Micheál Martin (Tánaiste and Minister), Department of Foreign Affairs
Intent: Educate stakeholders about the challenges of delivering services internationally and the potential impact on rare disease patients globally
Methods: Email
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Cathal Berry (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Michael McGrath (TD), Dáil Éireann, the Oireachtas; Simon Coveney (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Peter Burke (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Róisín Shortall (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (TD), Dáil Éireann, the Oireachtas; Catherine Ardagh (Senator), Seanad; Martin Conway (Senator), Seanad; Erin McGreehan (Senator), Seanad; Pauline O'Reilly (Senator), Seanad; Billy Kelleher (MEP), European Parliament; Deirdre Clune (MEP), European Parliament; Kevin Barrett (Special Adviser), Department of Public Expenditure and Reform; Chris Donoghue (Special Adviser), Department of Enterprise, Trade and Employment; Bríd Murphy (Special Adviser), Department of the Taoiseach; Clare Mungovan (Special Adviser), Department of the Taoiseach; Philip O'Callaghan (Deputy Chief of Staff), Department of the Taoiseach; Matthew Lynch (Special Adviser), Department of the Taoiseach
Intent: Awareness raising and improving access to treatments for people with rare diseases
Methods: EmailMeetingPhone call
Politician(s) lobbied: Catherine Ardagh (Senator), Seanad; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (Senator), Seanad; Annie Hoey (Senator), Seanad; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Matt Shanahan (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Tánaiste and Minister), Department of Foreign Affairs; Michael McGrath (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas; James O'Connor (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Róisín Shortall (TD), Dáil Éireann, the Oireachtas; Martin Conway (Senator), Seanad; Seán Kyne (Senator), Seanad; Gerry Horkan (Senator), Seanad; Eugene Murphy (Senator), Seanad; Lisa Chambers (Senator), Seanad; Malcolm Byrne (Senator), Seanad; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Frances Fitzgerald (MEP), European Parliament; Seán Kelly (MEP), European Parliament; Deirdre Clune (MEP), European Parliament; Brian Murphy (Chief of Staff), Department of the Taoiseach; Clare Mungovan (Special Adviser), Department of the Taoiseach; Kevin Barrett (Special Adviser), Department of Finance; Philip O'Callaghan (Deputy Chief of Staff), Department of the Taoiseach; Matthew Lynch (Special Adviser), Department of the Taoiseach; Deirdre Gillane (Chief of Staff), Department of the Taoiseach; Susan Mitchell (Special Adviser), Department of Health; Paraic Gallagher (Special Adviser), Department of Health; Seán Crowe (TD), Dáil Éireann, the Oireachtas
Intent: Awareness raising and improving access to treatments for people with rare diseases.
Methods: EmailMeetingPhone callVirtual Meeting
Details by Method
Virtual Meeting
No description