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Lobbying Records (Page 1 of 4)
2024-12-09
Politician(s) lobbied: John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Colm Burke (Minister of State), Department of Health; Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Seán Kyne (Senator), Seanad
Intent: Debra wished to thank the parties for their support in 2024 that led to the government support of the 2025 Pre Budget Submission for people living with EB in Ireland and implementation of a plan to fund the initiatives through the HSE from 2025. DEBRA intended to keep parties updated and secure continued support to ensure the initiatives from Debra's 2025 PreBudget Submission are implemented.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | To inform the relevant parties we lobbied earlier in the year of the outcome of Prebudget Submission following a meeting with Minister Stephen Donnelly |
| — | who has agreed to support the submission. |
2024-08-26
Politician(s) lobbied: Seán Crowe (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Frances Black (Senator), Seanad; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Jack Chambers (Minister), Department of Finance; Colm Burke (Minister of State), Department of Health; Stephen Donnelly (Minister), Department of Health; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Hildegarde Naughton (Minister of State), Department of Health; Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Pauline Tully (TD), Dáil Éireann, the Oireachtas
Intent: To raise awareness of challenges faced by people with EB when accessing services and supports in acute and community settings, and to ask for consideration for ringfenced funding for these services in budget 2025.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Dissemination of a pre-budget submission to key members of the Dail |
| — | including the Minister for Health |
| — | the Joint Health Committee |
| — | and party spokespeople on health and disability. |
2024-08-26
Politician(s) lobbied: Bernard Durkan (TD), Dáil Éireann, the Oireachtas
Intent: Securing ringfenced funding for the provision of nursing support and care packages for people with EB.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Representation made on our behalf relating to funding and delivery of services for people with EB. |
2024-08-26
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas
Intent: Clarity on service provisions and awareness of challenges facing people with EB
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Submission of Parliamentary Questions regarding gaps in the provision of services for people with Epidermolysis Bullosa |
2024-08-26
Politician(s) lobbied: Seán Crowe (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Regina Doherty (Senator), Seanad; Regina Doherty (MEP), European Parliament; Barry Andrews (MEP), European Parliament; Daithí Doolan (Councillor), Dublin City Council; Lynn Boylan (MEP), European Parliament; Ciarán Cuffe (MEP), European Parliament; Aodhán Ó Ríordáin (MEP), European Parliament; Bríd Smith (TD), Dáil Éireann, the Oireachtas; Clare Daly (MEP), European Parliament; Maria Walsh (MEP), European Parliament; Niall Blaney (Senator), Seanad; Lisa Chambers (Senator), Seanad; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Chris MacManus (MEP), European Parliament; Pauline O'Reilly (Senator), Seanad; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Seán Kelly (MEP), European Parliament; Billy Kelleher (MEP), European Parliament; Cynthia Ní Mhurchú (MEP), European Parliament; Kathleen Funchion (MEP), European Parliament; Paul Gavan (Senator), Seanad; Grace O'Sullivan (MEP), European Parliament; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Seán Kyne (Senator), Seanad; John Sheahan (Councillor), Limerick City and County Council; Tom Ruddle (Councillor), Limerick City and County Council; Liam Galvin (Councillor), Limerick City and County Council; Francis Foley (Councillor), Limerick City and County Council; Michael Collins (Councillor), Limerick City and County Council; Abul Kalam Azad Talukder (Councillor), Limerick City and County Council; Elisa O'Donovan (Councillor), Limerick City and County Council; Dan McSweeney (Councillor), Limerick City and County Council; Joe Leddin (Councillor), Limerick City and County Council; Fergus Kilcoyne (Councillor), Limerick City and County Council; Barry Walsh (Councillor), Laois County Council; Marie Tuohy (Councillor), Laois County Council; Caroline Dwane Stanley (Councillor), Laois County Council; William Aird (Councillor), Laois County Council; Robert Power (Councillor), Kildare County Council; Chris Pender (Councillor), Kildare County Council; Tracey O'Dwyer (Councillor), Kildare County Council; Peggy O'Dwyer (Councillor), Kildare County Council; Noel Heavey (Councillor), Kildare County Council; Mikey Sheehy (Councillor), Kerry County Council; Anne O'Sullivan (Councillor), Kerry County Council; Terry O'Brien (Councillor), Kerry County Council; Sam Locke (Councillor), Kerry County Council; Deirdre Ferris (Councillor), Kerry County Council; Angie Baily (Councillor), Kerry County Council; Peter Keane (Councillor), Galway City Council; Clodagh Higgins (Councillor), Galway City Council; Alan Curran (Councillor), Galway City Council; John Connolly (Councillor), Galway City Council; Ollie Turner (Councillor), Galway County Council; Andrew Reddington (Councillor), Galway County Council; Karey McHugh Farag (Councillor), Galway County Council; Donagh Mark Killilea (Councillor), Galway County Council; Pa Daly (TD), Dáil Éireann, the Oireachtas; Mary Hoade (Councillor), Galway County Council; Noel Thomas (Councillor), Galway County Council; Pádraig Mac an Iomaire (Councillor), Galway County Council; Cillian Keane (Councillor), Galway County Council; Albert Dolan (Councillor), Galway County Council; David Collins (Councillor), Galway County Council; James Charity (Councillor), Galway County Council; Helen Uchechukwu Ogbu (Councillor), Galway City Council; Terry O'Flaherty (Councillor), Galway City Council; Declan McDonnell (Councillor), Galway City Council; Shane Forde (Councillor), Galway City Council; Alan Cheevers (Councillor), Galway City Council; Justin Moylan (Councillor), Dun Laoghaire-Rathdown County Council; Tom Kivlehan (Councillor), Dun Laoghaire-Rathdown County Council; Thomas Joseph (Councillor), Dun Laoghaire-Rathdown County Council; Melisa Halpin (Councillor), Dun Laoghaire-Rathdown County Council; Lorraine Hall (Councillor), Dun Laoghaire-Rathdown County Council; Mary Fayne (Councillor), Dun Laoghaire-Rathdown County Council; JP Durkan (Councillor), Dun Laoghaire-Rathdown County Council; Joanna Tuffy (Councillor), South Dublin County Council; Liona O'Toole (Councillor), South Dublin County Council; Paul Gogarty (Councillor), South Dublin County Council; Vicki Casserly (Councillor), South Dublin County Council; Caroline Brady (Councillor), South Dublin County Council; Carrie Smyth (Councillor), Dun Laoghaire-Rathdown County Council; Frank McNamara (Councillor), Dun Laoghaire-Rathdown County Council; Hugh Lewis (Councillor), Dun Laoghaire-Rathdown County Council; Jim Gildea (Councillor), Dun Laoghaire-Rathdown County Council; Jacqueline Burke (Councillor), Dun Laoghaire-Rathdown County Council; Darragh Butler (Councillor), Fingal County Council; James Humphreys (Councillor), Fingal County Council; Luke Corkery (Councillor), Fingal County Council; Joe Newman (Councillor), Fingal County Council; Dean Mulligan (Councillor), Fingal County Council; Malachy Quinn (Councillor), Fingal County Council; Gráinne Maguire (Councillor), Fingal County Council; Tom Murphy (Councillor), Dun Laoghaire-Rathdown County Council; Brendan Ryan (Councillor), Fingal County Council; Tom O'Leary (Councillor), Fingal County Council; Cathal Boland (Councillor), Fingal County Council; Corina Johnston (Councillor), Fingal County Council; Robert O'Donoghue (Councillor), Fingal County Council; Eoghan Dockrell (Councillor), Fingal County Council; Liam Quaide (Councillor), Cork County Council; Patrick Mulcahy (Councillor), Cork County Council; Michael Hegarty (Councillor), Cork County Council; Ann Marie Ahern (Councillor), Cork County Council; Pádraig Rice (Councillor), Cork City Council; Shane O'Callaghan (Councillor), Cork City Council; Sean Martin (Councillor), Cork City Council; Fiona Kerins (Councillor), Cork City Council; Paudie Dineen (Councillor), Cork City Council; Dan Boyle (Councillor), Cork City Council; John Paul O'Shea (Councillor), Cork County Council; Ian Doyle (Councillor), Cork County Council; Patrick Gerard Murphy (Councillor), Cork County Council; Finbarr Harrington (Councillor), Cork County Council; Caroline Cronin (Councillor), Cork County Council; Danny Collins (Councillor), Cork County Council; Trevor Smith (Councillor), Cavan County Council; TP O'Reilly (Councillor), Cavan County Council; Shane P O'Reilly (Councillor), Cavan County Council; Philip Brady (Councillor), Cavan County Council; Winston J. Bennett (Councillor), Cavan County Council; Val Smith (Councillor), Cavan County Council; Niall Smith (Councillor), Cavan County Council; Sarah O'Reilly (Councillor), Cavan County Council; Carmel Brady (Councillor), Cavan County Council; Ken Murnane (Councillor), Carlow County Council; Paul Doogue (Councillor), Carlow County Council; Andrea Dalton (Councillor), Carlow County Council; John Cassin (Councillor), Carlow County Council; Fergal Browne (Councillor), Carlow County Council; Martha Fanning (Councillor), Dun Laoghaire-Rathdown County Council; Conor Dowling (Councillor), Dun Laoghaire-Rathdown County Council; Maurice Dockrell (Councillor), Dun Laoghaire-Rathdown County Council; Michael Clark (Councillor), Dun Laoghaire-Rathdown County Council; Dan Carson (Councillor), Dun Laoghaire-Rathdown County Council; Marie Baker (Councillor), Dun Laoghaire-Rathdown County Council; Patrick Gerard Murphy (Councillor), Cork County Council; Daithí Doolan (Councillor), Dublin City Council; Duncan Smith (TD), Dáil Éireann, the Oireachtas
Intent: Consideration of the rights and needs of people with EB in new plans, policies and actions taken by newly elected representatives.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Manifesto distributed to key elected representatives for the European and Local Elections |
| — | party spokes people on health and disability |
| — | and members of the Joint Committee on Health |
2024-05-13
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas
Intent: Awareness of challenges facing people with EB
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Engagement with TDs on Topical Debate around the Rare Disease Plan |
2024-05-13
Politician(s) lobbied: Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas
Intent: Clarity on service provisions and awareness of challenges facing people with EB
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Submission of Parliamentary Questions regarding gaps in the provision of services for people with Epidermolysis Bullosa |
2024-05-13
Politician(s) lobbied: Noel Byrne (Special Adviser), Department of Children, Equality, Disability, Integration and Youth
Intent: Clarity on funding allocated to the provision of services for children with Epidermolysis Bullosa
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Request for information to the Office of the Minister for Disability |
2024-05-13
Politician(s) lobbied: Seán Crowe (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad
Intent: Awareness of unmet need, and challenges in health provisions for people with Epidermolysis Bullosa::Consideration of these issues when developing future policy and service plans in the field of health
Methods: Email, Phone call, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Engagement with the Joint Committee on Health |
2023-12-21
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Violet Anne Wynne (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Seán Haughey (TD), Dáil Éireann, the Oireachtas; Chris Andrews (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Joe O'Brien (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Dessie Ellis (TD), Dáil Éireann, the Oireachtas; Neale Richmond (Minister of State), Department of Enterprise, Trade and Employment; John Lahart (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Catherine Connolly (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (Minister of State), Department of Health; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Charles Flanagan (TD), Dáil Éireann, the Oireachtas; Richard O'Donoghue (TD), Dáil Éireann, the Oireachtas; Robert Troy (TD), Dáil Éireann, the Oireachtas; Imelda Munster (TD), Dáil Éireann, the Oireachtas; Damien English (TD), Dáil Éireann, the Oireachtas; Marian Harkin (TD), Dáil Éireann, the Oireachtas; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Martin Conway (Senator), Seanad; Eileen Flynn (Senator), Seanad; Annie Hoey (Senator), Seanad; Erin McGreehan (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Tom Clonan (Senator), Seanad
Intent: Highlight the findings of this report and Debra's recommendations::Gain support for our request for investment in services for epidermolysis bullosa
Methods: Email, Letter, Virtual Meeting, Event / Reception
Details & Methods:
| Method | Description |
|---|---|
| — | Launch of report 'Life with EB in Ireland' |