Early Onset Parkinsons Disease CLG

Politician(s) lobbied: Paul Murphy (TD), Dáil Éireann, the Oireachtas

Intent: Development or amendment of public policy and public programmes relating to disability supports and cost of disability measures.

Methods: Meeting

Politician(s) lobbied: Caroline Winstanley (Councillor), Wicklow County Council; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Michael Collins (TD), Dáil Éireann, the Oireachtas; Christopher O'Sullivan (TD), Dáil Éireann, the Oireachtas; Aidan Farrelly (TD), Dáil Éireann, the Oireachtas; Catherine Ardagh (TD), Dáil Éireann, the Oireachtas; Donna McGettigan (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Barry Heneghan (TD), Dáil Éireann, the Oireachtas; George Lawlor (TD), Dáil Éireann, the Oireachtas; Joe Cooney (TD), Dáil Éireann, the Oireachtas; Conor Sheehan (TD), Dáil Éireann, the Oireachtas; Malcolm Byrne (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; Grace Boland (TD), Dáil Éireann, the Oireachtas; Barry Ward (TD), Dáil Éireann, the Oireachtas; Paula Butterly (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Norma Foley (TD), Dáil Éireann, the Oireachtas; Eoghan Kenny (TD), Dáil Éireann, the Oireachtas; Cian O'Callaghan (TD), Dáil Éireann, the Oireachtas; Jack Chambers (TD), Dáil Éireann, the Oireachtas; Timmy Dooley (TD), Dáil Éireann, the Oireachtas; Laura Harmon (Senator), Seanad; Alice-Mary Higgins (Senator), Seanad; Malcolm Noonan (Senator), Seanad; Teresa Costello (Senator), Seanad; Maria Byrne (Senator), Seanad; Pauline Tully (Senator), Seanad; Joe Conway (Senator), Seanad; Aubrey McCarthy (Senator), Seanad; Noel O'Donovan (Senator), Seanad

Intent: To raise awareness among elected representatives and policymakers regarding the challenges facing people living with Early Onset Parkinson’s Disease and advocate for improved healthcare services, rehabilitation supports and policy responses.

Methods: Meeting

Politician(s) lobbied: Lynn Ruane (Senator), Seanad

Intent: To raise awareness among elected representatives of the healthcare, financial and social challenges experienced by people living with Early Onset Parkinson’s Disease and advocate for improved supports, services and policy responses.

Methods: Meeting

Politician(s) lobbied: Paul Murphy (TD), Dáil Éireann, the Oireachtas

Intent: To raise awareness among elected representatives of the healthcare, financial and social challenges experienced by people living with Early Onset Parkinson’s Disease and advocate for improved supports, services and policy responses.

Methods: Meeting

Politician(s) lobbied: David Cullinane (TD), Dáil Éireann, the Oireachtas

Intent: To raise awareness of the challenges facing people living with Early Onset Parkinson’s Disease and advocate for improved neurological services, rehabilitation supports, DBS access and disability supports.

Methods: Meeting

Politician(s) lobbied: Pádraig Rice (TD), Dáil Éireann, the Oireachtas

Intent: Government must allocate funding to upgrade infastructure, doubling capacity for life-changing Parkinson’s Disease surgery to be doubled through the investment in a new neurosurgical robot for Deep Brain Stimulation surgery. Requested public backing of this position. Date 25/11/2025 Pádraig Rice Social Democrats::Funding for DBS Neurosurgical robot upgrade, reducing lengthy waiting lists by increasing operations from 1 per day to 2 per day.::Timely accessible care for Parkinson's patients in Ireland reducing the need for unnecessary overseas referrals and retaining surgical expertise in the country.

Methods: Email

Politician(s) lobbied: Paul Gogarty (Councillor), South Dublin County Council; Shane Moynihan (TD), Dáil Éireann, the Oireachtas

Intent: Requesting their support on these issues.

Methods: Meeting

Politician(s) lobbied: Jack Chambers (TD), Dáil Éireann, the Oireachtas

Intent: Secure funding in the 2026 budget. Raise awareness on the easy to ignore age group and advocate for better services and supports

Methods: Meeting

Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health

Intent: Neurologists of the Mater Hospital drew up a business case of €2.4 million to continue the Deep Brain Stimulation service in Ireland, at the Mater and Beaumont Hospital. EOPD.ie approached Minister Stephen Donnelly to secure funding for the DBS service.

Methods: Informal communication

Politician(s) lobbied: Unknown

Intent: Unknown

Methods: Unknown