Epilepsy Ireland

Total Lobbying Efforts: 189

All Officials
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Lobbying Records (Page 1 of 19)

2025-01-21
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Fiona O'Loughlin (Senator), Seanad; Mark Wall (Senator), Seanad; Maria Byrne (Senator), Seanad
Intent: To raise awareness of Sudden Unexpected Death in Epilepsy.::Asked DPOs to share a message of support for SUDEP Action Day on their social media channels.::Seeking support for Epilepsy Ireland's calls for the development of a national strategy to reduce epilepsy-related deaths in Ireland
Methods: Letter, Email
Details & Methods:
MethodDescription
Writing to Minister for Health and all TDs and Senators to raise awareness of SUDEP Action Day 2024 and providing details of a new Irish study on the prevalence of SUDEP in Ireland.
2025-01-21
Politician(s) lobbied: Patrick Costello (TD), Dáil Éireann, the Oireachtas
Intent: For the Deputy to submit a Parliamentary Question to the Minister for Health seeking an update on the status of reimbursement for this anti-seizure medication.
Methods: Email
Details & Methods:
MethodDescription
Seeking an update on the status of the reimbursement of the anti-seizure medication FINTEPLA.
2025-01-21
Politician(s) lobbied: Heather Humphreys (Minister), Department of Social Protection
Intent: No intended results.
Methods: Email
Details & Methods:
MethodDescription
Thanking Minister for her work on new Free Travel scheme following announcement of her retirement.
2025-01-21
Politician(s) lobbied: Neasa Hourigan (TD), Dáil Éireann, the Oireachtas
Intent: To share a copy of the response to Epilepsy Ireland's complaint with the Deputy for her information.
Methods: Email
Details & Methods:
MethodDescription
Sharing a copy of correspondence received from the Road Safety Authority following a recent advertising campaign as the Deputy had also spoken publicly on the matter.
2025-01-21
Politician(s) lobbied: Niamh Kennedy (Councillor), Donegal County Council; Kevin Callan (Councillor), Louth County council; Peter Conlan (Councillor), Monaghan County Council; TP O'Reilly (Councillor), Cavan County Council; Paddy O'Rourke (Councillor), Leitrim County Council; Declan Bree (Councillor), Sligo County Council; Donna Sheridan (Councillor), Mayo County Council; Paschal Fitzmaurice (Councillor), Roscommon County Council; Mark Casey (Councillor), Longford County Council; Liam McDaniel (Councillor), Westmeath County Council; Sharon Tolan (Councillor), Meath County Council; Brian McDonagh (Councillor), Fingal County Council; Jim O'Leary (Councillor), Dun Laoghaire-Rathdown County Council; Baby Pereppadan (Councillor), South Dublin County Council; Audrey Hennessy-Kennedy (Councillor), Offaly County Council; Ollie Turner (Councillor), Galway County Council; Peter Keane (Councillor), Galway City Council; Alan O'Callaghan (Councillor), Clare County Council; Declan Burgess (Councillor), Tipperary County Council; Paul O'Brien (Councillor), Wicklow County Council; Pip Breen (Councillor), Wexford County Council; Fintan Phelan (Councillor), Carlow County Council; Joe Malone (Councillor), Kilkenny County Council; Jason Murphy (Councillor), Waterford City and County Council; John Moran (Mayor of Limerick), Limerick City and County Council; Kevin Duffy (Councillor), Kildare County Council; Brendán Fitzgerald (Councillor), Kerry County Council; Joe Carroll (Councillor), Cork County Council; Dan Boyle (Councillor), Cork City Council; Padraig Fleming (Councillor), Laois County Council; Donna Cooney (Councillor), Dublin City Council
Intent: For the mayors/deputy mayors to submit a motion at their next council meeting.
Methods: Email
Details & Methods:
MethodDescription
Contacted all current Mayors of local authorities asking that they submit a motion in support of International Epilepsy Day to recognise all those living with epilepsy within their communities and calling on the Government to commit to implementing the World Health Organisation Intersectoral Global Action Plan on Epilepsy and other neurological conditions.
2025-01-21
Politician(s) lobbied: Cathy Bennett (Councillor), Monaghan County Council; Joe Cooney (Councillor), Clare County Council; Peter Cleere (Councillor), Kilkenny County Council; David Fitzgerald (Councillor), Kilkenny County Council; Michael Doyle (Councillor), Kilkenny County Council; Seán Ó hArgáin (Councillor), Kilkenny County Council; Adrienne Wallace (Councillor), Carlow County Council; Carmel Brady (Councillor), Cavan County Council; David Maxwell (Councillor), Monaghan County Council; TP O'Reilly (Councillor), Cavan County Council; Sarah O'Reilly (Councillor), Cavan County Council; Shane P O'Reilly (Councillor), Cavan County Council; Rita McInerney (Councillor), Clare County Council; Donna McGettigan (Councillor), Clare County Council; Deirdre O'Brien (Councillor), Cork County Council; Noel McCarthy (Councillor), Cork County Council; Mary Linehan Foley (Councillor), Cork County Council; William O'Leary (Councillor), Cork County Council; Liam Quaide (Councillor), Cork County Council; Eoghan Kenny (Councillor), Cork County Council; Garret Kelleher (Councillor), Cork City Council; Oliver Moran (Councillor), Cork City Council; Tony Fitzgerald (Councillor), Cork City Council; John Daniel Maher (Councillor), Cork City Council; Joe Lynch (Councillor), Cork City Council; Kenneth Noel O'Flynn (Councillor), Cork City Council; John Paul O'Shea (Councillor), Cork County Council; Michael Creed (Councillor), Cork County Council; Laura Harmon (Councillor), Cork City Council; Seamus McGrath (Councillor), Cork County Council; Shane O'Callaghan (Councillor), Cork City Council; Úna McCarthy (Councillor), Cork County Council; Pádraig Rice (Councillor), Cork City Council; Noel O'Donovan (Councillor), Cork County Council; Noel Andrew Jordan (Councillor), Donegal County Council; Aoibhinn Tormey (Councillor), Fingal County Council; Naoise Ó Muirí (Councillor), Dublin City Council; Deirdre Heney (Councillor), Dublin City Council; Tom Brabazon (Councillor), Dublin City Council; Mícheál MacDonncha (Councillor), Dublin City Council; John Lyons (Councillor), Dublin City Council; David Healy (Councillor), Fingal County Council; Barry Heneghan (Councillor), Dublin City Council; Emma Blain (Councillor), Dun Laoghaire-Rathdown County Council; James Geoghegan (Councillor), Dublin City Council; Hazel Chu (Councillor), Dublin City Council; Eoin Hayes (Councillor), Dublin City Council; Janice Boylan (Councillor), Dublin City Council; Joan Hopkins (Councillor), Fingal County Council; Ann Graves (Councillor), Fingal County Council; Tony Murphy (Councillor), Fingal County Council; Robert O'Donoghue (Councillor), Fingal County Council; Shane Moynihan (Councillor), South Dublin County Council; Vicki Casserly (Councillor), South Dublin County Council; Paul Gogarty (Councillor), South Dublin County Council; Eoin Ó Broin (Councillor), South Dublin County Council; Linda de Courcy (Councillor), South Dublin County Council; Francis Timmons (Councillor), South Dublin County Council; Alan Hayes (Councillor), South Dublin County Council; Conor Reddy (Councillor), Dublin City Council; Maeve O'Connell (Councillor), Dun Laoghaire-Rathdown County Council; Shay Brennan (Councillor), Dun Laoghaire-Rathdown County Council; Michael Fleming (Councillor), Dun Laoghaire-Rathdown County Council; Lettie McCarthy (Councillor), Dun Laoghaire-Rathdown County Council; Hazel De Nortuin (Councillor), Dublin City Council; Máire Devine (Councillor), Dublin City Council; Darragh Moriarty (Councillor), Dublin City Council; Jen Cummins (Councillor), Dublin City Council; Daithí Doolan (Councillor), Dublin City Council; Sarah Barnes (Councillor), South Dublin County Council; Teresa Costello (Councillor), South Dublin County Council; Alan Edge (Councillor), South Dublin County Council; Sarah Barnes (Councillor), South Dublin County Council; Ciarán Ahern (Councillor), South Dublin County Council; Niamh Whelan (Councillor), South Dublin County Council; Ruth Coppinger (Councillor), Fingal County Council; John Walsh (Councillor), Fingal County Council; Ellen Troy (Councillor), Fingal County Council; Breda Hanaphy (Councillor), Fingal County Council; Martha Fanning (Councillor), Dun Laoghaire-Rathdown County Council; Albert Dolan (Councillor), Galway County Council; Clodagh Higgins (Councillor), Galway City Council; Peter Roche (Councillor), Galway County Council; Louis O'Hara (Councillor), Galway City Council; Declan Geraghty (Councillor), Galway County Council; Eibhlín Seoighthe (Councillor), Galway City Council; John Connolly (Councillor), Galway City Council; Helen Uchechukwu Ogbu (Councillor), Galway City Council; Michael Cahill (Councillor), Kerry County Council; Evie Sammon (Councillor), Kildare County Council; Joe Neville (Councillor), Kildare County Council; Naoise O'Cearúil (Councillor), Kildare County Council; Aidan Farrelly (Councillor), Kildare County Council; Angela Feeney (Councillor), Kildare County Council; Bill Clear (Councillor), Kildare County Council; Chris Pender (Councillor), Kildare County Council; Shónagh Ní Raghallaigh (Councillor), Kildare County Council; William Aird (Councillor), Laois County Council; Aisling Moran (Councillor), Laois County Council; Frankie Daly (Councillor), Limerick City and County Council; Elisa O'Donovan (Councillor), Limerick City and County Council; Sarah Beasley (Councillor), Limerick City and County Council; Conor Sheehan (Councillor), Limerick City and County Council; Bridie Collins (Councillor), Limerick City and County Council; Noreen Stokes (Councillor), Limerick City and County Council; Kevin 'Boxer' Moran (Councillor), Westmeath County Council; Paul Hogan (Councillor), Westmeath County Council; Kevin Callan (Councillor), Louth County council; Joanna Byrne (Councillor), Louth County council; Marianne Butler (Councillor), Louth County council; Antoín Watters (Councillor), Louth County council; Paula Butterly (Councillor), Louth County council; Mark Duffy (Councillor), Mayo County Council; Chris Maxwell (Councillor), Mayo County Council; Paul Lawless (Councillor), Mayo County Council; Patsy O'Brien (Councillor), Mayo County Council; Gerry Murray (Councillor), Mayo County Council; Caroline O'Reilly (Councillor), Meath County Council; Sharon Tolan (Councillor), Meath County Council; Emer Tóibín (Councillor), Meath County Council; Maria White (Councillor), Meath County Council; Aisling Dempsey (Councillor), Meath County Council; Linda Nelson Murray (Councillor), Meath County Council; Ronan Moore (Councillor), Meath County Council; Noel French (Councillor), Meath County Council; Claire Murray (Councillor), Offaly County Council; John Clendennen (Councillor), Offaly County Council; Tony McCormack (Councillor), Offaly County Council; Eddie Fitzpatrick (Councillor), Offaly County Council; Fergus McDonnell (Councillor), Offaly County Council; Aoife Masterson (Councillor), Offaly County Council; Martina O'Connor (Councillor), Galway City Council; Edel Mcsharry (Councillor), Sligo County Council; Michael Clarke (Councillor), Sligo County Council; Nessa Cosgrove (Councillor), Sligo County Council; Gino O'Boyle (Councillor), Sligo County Council; Paddy O'Rourke (Councillor), Leitrim County Council; Marie Casserly (Councillor), Sligo County Council; Phyll Bugler (Councillor), Tipperary County Council; Michael Smith (Councillor), Tipperary County Council; Ryan O'Meara (Councillor), Tipperary County Council; Imelda Goldsboro (Councillor), Tipperary County Council; Michael Murphy (Councillor), Tipperary County Council; Michael Brennan (Councillor), Tipperary County Council; John O'Heney (Councillor), Tipperary County Council; Mary Roche (Councillor), Waterford City and County Council; Conor D. McGuinness (Councillor), Waterford City and County Council; Bridín Murphy (Councillor), Wexford County Council; Cathal Byrne (Councillor), Wexford County Council; Jim Codd (Councillor), Wexford County Council; George Lawlor (Councillor), Wexford County Council; Edward Timmins (Councillor), Wicklow County Council; Paul O'Brien (Councillor), Wicklow County Council; Joe Behan (Councillor), Wicklow County Council; Gerry O'Neill (Councillor), Wicklow County Council; Pat Kennedy (Councillor), Wicklow County Council; Fionntán Ó Súilleabháin (Councillor), Wexford County Council; Simon Harris (An Taoiseach), Department of the Taoiseach; Micheál Martin (Tánaiste and Minister), Department of Foreign Affairs; Roderic O'Gorman (Minister), Department of Children, Equality, Disability, Integration and Youth; Jack Chambers (Minister), Department of Finance; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Norma Foley (Minister), Department of Education; Catherine Martin (Minister), Department of Tourism, Culture, Arts, Gaeltacht, Sport and Media; Darragh O'Brien (Minister), Department of Housing, Local Government and Heritage; Charlie McConalogue (Minister), Department of Agriculture, Food and the Marine; Stephen Donnelly (Minister), Department of Health; Helen McEntee (Minister), Department of Justice; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Patrick O'Donovan (Minister), Department of Further and Higher Education, Research, Innovation and Science; Hildegarde Naughton (Government Chief Whip and Minister), Department of the Taoiseach; Dara Calleary (Minister of State), Department of Enterprise, Trade and Employment; Pippa Hackett (Minister of State), Department of Agriculture, Food and the Marine; Jennifer Carroll MacNeill (Minister of State), Department of the Taoiseach; Kieran O'Donnell (Minister of State), Department of Public Expenditure, NDP Delivery and Reform; Ossian Smyth (Minister of State), Department of Public Expenditure, NDP Delivery and Reform; Colm Burke (Minister of State), Department of Health; Martin Heydon (Minister of State), Department of Agriculture, Food and the Marine; Anne Rabitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Seán Fleming (Minister of State), Department of Foreign Affairs; Joe O'Brien (Minister of State), Department of Rural and Community Development; Alan Dillon (Minister of State), Department of Housing, Local Government and Heritage; Mary Butler (Minister of State), Department of Health; Malcolm Noonan (Minister of State), Department of Housing, Local Government and Heritage; Thomas Byrne (Minister of State), Department of Tourism, Culture, Arts, Gaeltacht, Sport and Media; Niall Collins (Minister of State), Department of Further and Higher Education, Innovation and Science; Neale Richmond (Minister of State), Department of Finance; James Browne (Minister of State), Department of Justice; Emer Higgins (Minister of State), Department of Enterprise, Trade and Employment; James Lawless (Minister of State), Department of Environment, Climate and Communications; Robbie Gallagher (Senator), Seanad; Róisín Garvey (Senator), Seanad; Timmy Dooley (Senator), Seanad; Jerry Buttimer (Senator), Seanad; Tim Lombard (Senator), Seanad; Nikki Bradley (Senator), Seanad; Mary Fitzpatrick (Senator), Seanad; Marie Sherlock (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Catherine Ardagh (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Emer Currie (Senator), Seanad; Barry Ward (Senator), Seanad; Seán Kyne (Senator), Seanad; Pauline O'Reilly (Senator), Seanad; Vincent P Martin (Senator), Seanad; Fiona O'Loughlin (Senator), Seanad; Mark Wall (Senator), Seanad; Maria Byrne (Senator), Seanad; Paul Gavan (Senator), Seanad; Micheál Carrigy (Senator), Seanad; Erin McGreehan (Senator), Seanad; John McGahon (Senator), Seanad; Lisa Chambers (Senator), Seanad; Aisling Dolan (Senator), Seanad; Eugene Murphy (Senator), Seanad; John Cummins (Senator), Seanad; Malcolm Byrne (Senator), Seanad
Intent: For them to support our campaign to enhance Epilepsy Services & Infrastructure nationally to improve access to specialist services and treatments for the 45,000 people living with epilepsy in Ireland.::For them to support our campaign to expand the HSE’s Chronic Disease Management Programme to include epilepsy, encouraging collaboration between people with epilepsy and their GPs and reducing pressure on specialist services.::For them to support our campaign to develop a National Strategy to reduce the estimated 130 epilepsy-related deaths in Ireland and taking targeted action to save lives.::For them to support our campaign to make Ireland’s schools seizure-safe for the 10,000 children with epilepsy of school going age by ensuring all teachers are trained in seizure first aid and epilepsy.awareness as part of initial teacher training.::For them to support our campaign to ensuring Ireland’s 2022 commitment to implementing the WHO Intersectoral Global Action Plan on Epilepsy and other Ne
Methods: Email
Details & Methods:
MethodDescription
Contacted listed DPOs in their capacity as General Election Candidates to support EI's advocacy campaigns if elected to the next Dáil
2024-09-19
Politician(s) lobbied: Barry Andrews (MEP), European Parliament; Niall Blaney (Senator), Seanad; Lisa Chambers (Senator), Seanad; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Billy Kelleher (MEP), European Parliament; Daithí Doolan (Councillor), Dublin City Council; Chris MacManus (MEP), European Parliament; Lynn Boylan (Senator), Seanad; Kathleen Funchion (TD), Dáil Éireann, the Oireachtas; Paul Gavan (Senator), Seanad; Regina Doherty (Senator), Seanad; Seán Kelly (MEP), European Parliament; Maria Walsh (MEP), European Parliament; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Pauline O'Reilly (Senator), Seanad; Grace O'Sullivan (MEP), European Parliament; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Bríd Smith (TD), Dáil Éireann, the Oireachtas; Mick Wallace (MEP), European Parliament; Clare Daly (MEP), European Parliament; Luke Ming Flanagan (MEP), European Parliament; Michael McNamara (TD), Dáil Éireann, the Oireachtas
Intent: For candidates to commit to raising this in the EU parliament if elected to encourage the Irish Government to act on the recommendations of the WHO IGAP
Methods: Email
Details & Methods:
MethodDescription
Raising the implementation of the World Health Organisation Global Action Plan on Epilepsy with candidates in the European Elections
2024-09-19
Politician(s) lobbied: Unknown
Intent: For councillors to raise the funding shortfall as part of their participation in regional health forums
Methods: Unknown
Details & Methods:
MethodDescription
Informing sitting councillors in the Galway
Mayo and Roscommon Local Authorities about Epilepsy Ireland's funding shortfall in CHO2 and the work we carry out in the area
2024-09-19
Politician(s) lobbied: Niall Collins (Minister of State), Department of Further and Higher Education, Innovation and Science
Intent: For the Minister to submit a PQ to get further information on the services at the hospital
Methods: Email
Details & Methods:
MethodDescription
Seeking that the Minister submit a PQ about paediatric epilepsy services at University Hospital Limerick
2024-09-19
Politician(s) lobbied: Niall O'Connor (Special Adviser), Department of Rural and Community Development; Pauric McPhillips (Special Adviser), Department of Social Protection; Heather Humphreys (Minister), Department of Social Protection; Patrick Costello (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (Minister of State), Department of Finance; Erin McGreehan (Senator), Seanad; Marc Ó Cathasaigh (TD), Dáil Éireann, the Oireachtas; Aindrias Moynihan (TD), Dáil Éireann, the Oireachtas
Intent: To raise awareness of the changes to the free travel scheme amongst elected representatives.
Methods: Email, Social Media, Informal communication
Details & Methods:
MethodDescription
Providing information about the opening of the Free Travel scheme to elected representatives; thanking them for support; and liaising with Minister Humphreys and team to publicise changes to the scheme.