Politician(s) lobbied: Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Laura Harmon (Senator), Seanad; Maria Byrne (Senator), Seanad; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Kiera Keogh (TD), Dáil Éireann, the Oireachtas; Liam Quaide (TD), Dáil Éireann, the Oireachtas; Tom Clonan (Senator), Seanad; Margaret Murphy O'Mahony (Senator), Seanad
Intent: To highlight FASD to members of the committee and the prevalence of FASD in Ireland.
Methods: Meeting
Details by Method
Meeting
To highlight FASD to members of the committee and the prevalence of FASD in Ireland.
Politician(s) lobbied: Simon Harris (Minister), Department of Finance; Emer Higgins (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Hildegarde Naughton (Minister), Department of Education
Intent: Attended Fine Gael Disability Network Conference in Galway to discuss Foetal Alcohol Spectrum Disorder, funding for the organisation for 2026 and recognition of FASD in Ireland.
Methods: Event / Reception
Details by Method
Event / Reception
Attended Fine Gael Disability Network Conference in Galway to discuss Foetal Alcohol Spectrum Disorder, funding for the organisation for 2026 and recognition of FASD in Ireland.
Politician(s) lobbied: Marie Sherlock (TD), Dáil Éireann, the Oireachtas
Intent: To hold an AV Room event on 10 June in Leinster House to advocate for a coordinated, cross-departmental response to Foetal Alcohol Spectrum Disorder and to engage with elected reps across parties to raise awareness of FASD.
Methods: Email
Details by Method
Email
Emails with the TD and her team to sponsor the event.
Politician(s) lobbied: Emer Higgins (Minister of State), Department of Children, Equality, Disability, Integration and Youth
Intent: To discuss funding for FASD Ireland for 2026.
Methods: Virtual Meeting
Details by Method
Virtual Meeting
Meeting with Minister Emer Higgins, officials from her office and HSE representatives on 01 May 2026
Politician(s) lobbied: Anne Rabbitte (Senator), Seanad; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (Minister), Department of Health; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Joe Cooney (TD), Dáil Éireann, the Oireachtas; Donna McGettigan (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Emer Higgins (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Simon Harris (Minister), Department of Finance; Martin Daly (TD), Dáil Éireann, the Oireachtas; Timmy Dooley (Minister of State), Department of Agriculture, Food and the Marine; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Jim O'Callaghan (Minister), Department of Justice
Intent: Communication with Ministers, TD's & Senators regarding Foetal Alcohol Spectrum Disorder, Funding for 2026, delays in funding for 2025 and requests to meet with FASD Ireland to discuss these issues.
Methods: EmailMeetingPhone callSocial Media
Details by Method
Email
Emails to ministers & TD's to attend and speak at FASD Ireland Annual Conference in May 2026.
Email
Emails with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder, Funding for FASD Ireland in 2026 and diagnosis pathways in Ireland.
Meeting
Meetings with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder, Funding for FASD Ireland in 2026 and diagnosis pathways in Ireland.
Phone call
Phone Calls with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder, Funding for FASD Ireland in 2026 and diagnosis pathways in Ireland.
Social Media
Social Media Messages with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder, Funding for FASD Ireland in 2026 and diagnosis pathways in Ireland.
Social Media
Tagging Ministers, TDs and Senators in Social Media posts from 10th International Conference on Adolescents and Adults with FASD in Seattle 19-21 April 2026.
Politician(s) lobbied: Unknown
Intent: Email to all Oireachtas members regarding the funding issues - delays in payments for 2025 and funding requirements for 2026.
Methods: Unknown
Details by Method
Method not specified
FASD Ireland Funding Issues for 2026
Politician(s) lobbied: Hildegarde Naughton (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Norma Foley (Minister), Department of Education; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas
Intent: Email invitations to meet with various TD's /Ministers to discuss the recognition of Foetal Alcohol Spectrum Disorder in Ireland.
Methods: Email
Details by Method
Email
Email invitations to meet with various TD's /Ministers to discuss the recognition of Foetal Alcohol Spectrum Disorder in Ireland.Proposed Agenda:1. Discussion of the RCSI research published on 9 September 20252. How FASD fits within the Department of Children, Disability and Equality3. Framework of support for young adults (18–30) living with FASD
Politician(s) lobbied: Bernard Gloster (Chief Executive Officer), Health Service Executive
Intent: Delays with Grant Aid Agreement Funding being paid to FASD Ireland - payment was due in December 2025 but this was changed to January 2026. Intended result was to have this funding released as agreed in December 2025.
Methods: Email
Details by Method
Email
Email to DPO regarding the funding situation and the potential impact to services.
Politician(s) lobbied: Unknown
Intent: Launch of research from FASD Ireland and Royal College of Surgeons in Ireland
Methods: Unknown
Details by Method
Method not specified
FASD Ireland & RCSI Research Launch
Politician(s) lobbied: Anne Rabbitte (Senator), Seanad; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (Minister), Department of Health; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Joe Cooney (TD), Dáil Éireann, the Oireachtas; Donna McGettigan (TD), Dáil Éireann, the Oireachtas; Sinéad Gibney (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas
Intent: Meetings with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder and diagnosis pathways in Ireland.
Methods: EmailMeetingPhone callSocial Media
Details by Method
Email
Emails with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder and diagnosis pathways in Ireland.
Meeting
Meetings with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder and diagnosis pathways in Ireland.
Phone call
Phone Calls with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder and diagnosis pathways in Ireland.
Social Media
Social Media Messages with TD's/Senators to discuss Foetal Alcohol Spectrum Disorder and diagnosis pathways in Ireland.
