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Lobbying Records (Page 1 of 3)
2025-01-15
Politician(s) lobbied: Niamh Smyth (TD), Dáil Éireann, the Oireachtas
Intent: Additional funding.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Sought funding for Vision Tech project. This initiative has made a significant impact |
| — | helping over 60 individuals with sight loss to access various assistive technologies—from iPhones to Braille Displays—enabling them to pursue education |
| — | employment |
| — | and lead more independent lives. |
2023-09-07
Politician(s) lobbied: Pa Daly (TD), Dáil Éireann, the Oireachtas; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Patrick Costello (TD), Dáil Éireann, the Oireachtas; James Browne (Minister of State), Department of Justice
Intent: To ensure that the new Bill does not impact our fundraising through our Private Members' Draw lottery.
Methods: Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Gambling Regulation Bill 2022 |
2023-09-07
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2023-05-10
Politician(s) lobbied: James Browne (Minister of State), Department of Justice
Intent: To ensure that the new Bill does not impact our fundraising through our Private Members' Draw lottery.
Methods: Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Gambling Regulation Bill 2022 |
2023-05-10
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2022-05-10
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Alan O'Connor (Councillor), Cork County Council; Peter Burke (TD), Dáil Éireann, the Oireachtas
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2022-01-07
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2021-09-01
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Micheál Martin (An Taoiseach), Department of the Taoiseach; Frank Feighan (Minister of State), Department of Health; Anne Rabbitte (Minister of State), Department of Health; Norma Foley (Minister), Department of Education; Seán Fleming (Minister of State), Department of Finance; Patrick O'Donovan (Minister of State), Department of Public Expenditure and Reform; Roderic O'Gorman (Minister), Department of Children, Equality, Disability, Integration and Youth; Heather Humphreys (Minister), Department of Social Protection; Paschal Donohoe (Minister), Department of Finance; Tony Holohan (Chief Medical Officer), Department of Health; Kathleen MacLellan (Assistant Secretary), Department of Health
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2021-05-12
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Micheál Martin (An Taoiseach), Department of the Taoiseach; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas
Intent: Fighting Blindness hopes to have gene therapy Luxturna made available to those patients with a mutated RPE65 gene that causes sight loss.
Methods: Email, Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | The HSE reimbursement of gene therapy 'Luxturna' |
2020-05-19
Politician(s) lobbied: Martin Conway (Senator), Seanad; Ged Nash (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Robert Troy (TD), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas
Intent: To gain support from newly elected political representatives for our campaign of reducing waiting lists and access to gene therapy for those living with inherited retinal degeneration [IRD]::To influence public policy in the area of disability welfare.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Fighting Blindness launched a manifesto to reduce ophthalmology waiting lists |
| — | gain access to gene therapies |
| — | gain access to genetic coding and offset some of the wellbeing costs of living with inherited retinal degeneration [IRD]. |