Politician(s) lobbied:Damian Boylan (Councillor), Cork City Council
Intent: To invite Ministers and Senators to our Briefing on the 17th May, to secure the support of Ministers and Senators in our call for a National Strategy for Haemochromatosis and a Contact Lead for Haemochromatosis in the HSE & Department of Health
Methods:Email
Details by Method
Method not specified
Briefing Presentation to Ministers & Senators: Call for National Strategy for Haemochromatosis
Politician(s) lobbied:Stephen Donnelly (Minister), Department of Health
Intent: Main contact person, HH to be considered a chronic illness, waiving of venesection fees for patients without medical cards and without private insurance
Methods:Email
Details by Method
Method not specified
Request for Haemochromatosis main contact person for the Irish Haemochromatosis Assocation and other outstanding issues for patients to be resolved