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Lobbying Records (Page 1 of 3)
2025-01-20
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; John Lahart (TD), Dáil Éireann, the Oireachtas
Intent: Secure government funding to support patients living with pulmonary fibrosis in Ireland
Methods: Email, Phone call, Letter
Details & Methods:
| Method | Description |
|---|---|
| — | Creating awareness to members of The House of the Oireachtas and Minister for Health of the need for the need for funding for those living with pulmonary fibrosis in Ireland |
| — | and the unmet needs of those patients and the challenges they face living with a life limiting condition |
| — | the cost of running oxygen at home and rising energy costs. |
2024-09-23
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Miriam Murphy (Councillor), Wicklow County Council; Jack Chambers (Minister of State), Department of Tourism, Culture, Arts, Gaeltacht, Sport and Media; Susan Mitchell (Special Adviser), Department of Health; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Lorraine Clifford-Lee (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Frances Black (Senator), Seanad; Martin Conway (Senator), Seanad
Intent: A National Clinical Care programme and support for pulmonary fibrosis patients around the need for inclusion in the national rehabilitation programme and consideration and support for the running of oxygen at home, reimbursement by the HSE for payment of oxygen and the rising costs of energy.
Methods: Email, Letter
Details & Methods:
| Method | Description |
|---|---|
| — | Creating awareness to members of The House of the Oireachtas and Minister for Health of the need for a National Clinical Care Programme for patients living with pulmonary fibrosis in Ireland |
| — | and the unmet needs of those patients and the challenges they face living with a life limiting condition |
| — | the cost of running oxygen at home and rising energy costs. |
2024-05-20
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; Victor Boyhan (Senator), Seanad; David Cullinane (TD), Dáil Éireann, the Oireachtas; Malcolm Byrne (Senator), Seanad; Chris Andrews (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Paul Donnelly (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Thomas Gould (TD), Dáil Éireann, the Oireachtas; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Marie Sherlock (Senator), Seanad; Norma Foley (TD), Dáil Éireann, the Oireachtas; Martin Conway (Senator), Seanad; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (Minister), Department of Health; Pa Daly (TD), Dáil Éireann, the Oireachtas; Ronan McMahon (Councillor), South Dublin County Council; Darragh O'Brien (Minister), Department of Housing, Local Government and Heritage; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas
Intent: The ILFA want to create awareness for the need for a dedicated Clinical Care Programme for our patients living with pulmonary fibrosis in Ireland, their unmet needs, inequality in terms of treatment by the HSE around rehabilitation, the rising cost of energy at home due to their dependence on oxygen to live and oxygen supplier delivery inefficiencies. We requested a meeting the the Minister for Health, Stephen Donnelly and a meeting with the Joint Oireachtas Committee on Health (JOC).::To get a meeting with Minister Stephen Donnelly and the Joint Oireachtas Committee on Health and to create awareness of patients unmet needs in Ireland. ILFA wrote a letter to Minister Donnelly in January 2024 requesting a meeting with ILFA, which was rejected.::Nicola Cassidy (NC) met Richard Bruton (RB) TD on his canvassing journey - RB then wrote to the HSE on behalf of ILFA and Anne Horgan responded to RB who forwarded communication to NC.::The Irish Thoracic Society (ITS) wrote a letter to Colm Cro
Methods: Letter, Email, Meeting, Phone call
Details & Methods:
| Method | Description |
|---|---|
| — | Lobbying for a clinical care programme for patients living with a life limiting disease (in Ireland) 'pulmonary fibrosis' and the unmet needs of those patients. |
2024-01-18
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Norma Foley (Minister), Department of Education; Brendán Fitzgerald (Councillor), Kerry County Council; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Joe O'Brien (TD), Dáil Éireann, the Oireachtas; Michael Lowry (TD), Dáil Éireann, the Oireachtas; Pa Daly (TD), Dáil Éireann, the Oireachtas; Niall Collins (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Simon Coveney (TD), Dáil Éireann, the Oireachtas; Michael J. McGrath (Assistant Secretary), Department of Finance; Ronan McMahon (Councillor), South Dublin County Council; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas
Intent: To secure a meeting with the Oireachtas Health Committee for the request for a clinical care programme for patients living with pulmonary fibrosis in Ireland and to highlight unmet needs of those patients..
Methods: Email, Phone call, Letter, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Kathleen O'Meara |
| — | Public Affairs Consultant and ILFA members made representations to: Simon Coveney |
| — | Micheal Martin |
| — | Michael McGrath |
| — | Donnchadh Ó Laoghaire |
| — | Colm Burke |
| — | Sean Crowe |
| — | Richard Bruton |
| — | Norma Foley |
| — | Ronan McMahon |
| — | Michael Lowrey |
| — | Darragh O'Brien |
| — | Joe O'Brien |
| — | Cathal Crowe |
| — | Niall Collins |
| — | Brendan Fitzgerald |
| — | Pa Daly |
| — | Robert Brosnan. |
2023-09-18
Politician(s) lobbied: Michael Lowry (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Frances Black (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Martin Conway (Senator), Seanad; Annie Hoey (Senator), Seanad; Seán Kyne (Senator), Seanad; Cathal Crowe (TD), Dáil Éireann, the Oireachtas
Intent: Department for Health and HSE to work towards a clinical care programme for pulmonary fibrosis patients living in Ireland to ensure their healthcare needs are recognised and addressed. The difficulties and inequalities in healthcare that arise for lung fibrosis patients would be resolved by having a dedicated Clinical Care Programme and those patients.
Methods: Letter, Email, Phone call, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Kathleen O'Meara |
| — | Public Affairs Consultant |
| — | made representations to Michael Lowry TD on behalf of ILFA in May and June 2023 in relation the need for a clinical care programme for those living with lung fibrosis in Ireland and the unmet needs of those patients. Also |
| — | ILFA as a member of The Irish Donor Network made a submission to the Joint Oireachtas Committee on Health in relation to the Human Tissue Bill - June 2023 |
2023-05-20
Politician(s) lobbied: Brendan Smith (TD), Dáil Éireann, the Oireachtas; Norma Foley (Minister), Department of Education; Stephen Donnelly (Minister), Department of Health; Simon Harris (Minister), Department of Justice
Intent: Communication of information and news around the work of ILFA and updates for members on pulmonary fibrosis in Ireland
Methods: Letter
Details & Methods:
| Method | Description |
|---|---|
| — | Irish Lung Fibrosis Association Newsletter as a matter of information regarding the work of ILFA on behalf of those living with pulmonary fibrosis in Ireland |
2023-01-18
Politician(s) lobbied: Mark Daly (Senator), Seanad; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Martin Browne (TD), Dáil Éireann, the Oireachtas
Intent: Awareness::Awareness::Awareness around the need for a clinical care programme for those living with lung fibrosis in Ireland
Methods: Letter, Email, Event / Reception
Details & Methods:
| Method | Description |
|---|---|
| — | Irish Lung Fibrosis Association (ILFA) canvassing some members of the Oireachtas to create awareness of lung fibrosis in Ireland |
2022-09-20
Politician(s) lobbied: Simon Harris (Minister of State), Department of Health
Intent: Awareness
Methods: Letter
Details & Methods:
| Method | Description |
|---|---|
| — | Irish Lung Fibrosis Association Newsletter as a matter of information regarding the work of ILFA on behalf of those living with pulmonary fibrosis in Ireland |
2022-01-21
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: Government to support organ donation matters.
Methods: Informal communication, Letter
Details & Methods:
| Method | Description |
|---|---|
| — | The Irish Donor Network press release calling on government to support organ donation matters. |
2021-09-14
Politician(s) lobbied: Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Colm Burke (Senator), Seanad; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Paschal Donohoe (Minister), Department of Finance
Intent: To get a clinical care programme set up for our patients and members
Methods: Email, Informal communication
Details & Methods:
| Method | Description |
|---|---|
| — | Lobbying for a clinical care programme for pulmonary fibrosis patients |