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Lobbying Records (Page 1 of 4)
2024-09-20
Politician(s) lobbied: Aengus Ó Snodaigh (TD), Dáil Éireann, the Oireachtas; Alan Dillon (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Brendan Howlin (TD), Dáil Éireann, the Oireachtas; Brian Leddin (TD), Dáil Éireann, the Oireachtas; Bríd Smith (TD), Dáil Éireann, the Oireachtas; Cathal Berry (TD), Dáil Éireann, the Oireachtas; Aindrias Moynihan (TD), Dáil Éireann, the Oireachtas; Alan Farrell (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (TD), Dáil Éireann, the Oireachtas; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Brendan Griffin (TD), Dáil Éireann, the Oireachtas; Brendan Smith (TD), Dáil Éireann, the Oireachtas; Brian Stanley (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Catherine Connolly (TD), Dáil Éireann, the Oireachtas; Catherine Murphy (TD), Dáil Éireann, the Oireachtas; Charlie McConalogue (TD), Dáil Éireann, the Oireachtas; Christopher O'Sullivan (TD), Dáil Éireann, the Oireachtas; Ciaran Cannon (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Cormac Devlin (TD), Dáil Éireann, the Oireachtas; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Catherine Martin (TD), Dáil Éireann, the Oireachtas; Charles Flanagan (TD), Dáil Éireann, the Oireachtas; Chris Andrews (TD), Dáil Éireann, the Oireachtas; Cian O'Callaghan (TD), Dáil Éireann, the Oireachtas; Claire Kerrane (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Damien English (TD), Dáil Éireann, the Oireachtas; Dara Calleary (TD), Dáil Éireann, the Oireachtas; Darren O'Rourke (TD), Dáil Éireann, the Oireachtas; David Stanton (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Dessie Ellis (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Eamon Ryan (TD), Dáil Éireann, the Oireachtas; Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas; Francis Noel Duffy (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Holly Cairns (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Denise Mitchell (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Fergus O'Dowd (TD), Dáil Éireann, the Oireachtas; Frank Feighan (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Imelda Munster (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Heather Humphreys (TD), Dáil Éireann, the Oireachtas; Willie O'Dea (TD), Dáil Éireann, the Oireachtas; Violet Anne Wynne (TD), Dáil Éireann, the Oireachtas; Verona Murphy (TD), Dáil Éireann, the Oireachtas; Thomas Pringle (TD), Dáil Éireann, the Oireachtas; Thomas Gould (TD), Dáil Éireann, the Oireachtas; Thomas Byrne (TD), Dáil Éireann, the Oireachtas; Steven Matthews (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Simon Harris (TD), Dáil Éireann, the Oireachtas; Simon Coveney (TD), Dáil Éireann, the Oireachtas; Seán Sherlock (TD), Dáil Éireann, the Oireachtas; Seán Ó Fearghaíl (TD), Dáil Éireann, the Oireachtas; Seán Haughey (TD), Dáil Éireann, the Oireachtas; Seán Fleming (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Seán Canney (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Rose Conway-Walsh (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Roderic O'Gorman (TD), Dáil Éireann, the Oireachtas; Robert Troy (TD), Dáil Éireann, the Oireachtas; Richard O'Donoghue (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard Boyd Barrett (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Peter Fitzpatrick (TD), Dáil Éireann, the Oireachtas; Peter Burke (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas; Paul Kehoe (TD), Dáil Éireann, the Oireachtas; Paul Donnelly (TD), Dáil Éireann, the Oireachtas; Patrick O'Donovan (TD), Dáil Éireann, the Oireachtas; Patrick Costello (TD), Dáil Éireann, the Oireachtas; Patricia Ryan (TD), Dáil Éireann, the Oireachtas; Pat Buckley (TD), Dáil Éireann, the Oireachtas; Paschal Donohoe (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Padráig Mac Lochlainn (TD), Dáil Éireann, the Oireachtas; Pa Daly (TD), Dáil Éireann, the Oireachtas; Ossian Smyth (TD), Dáil Éireann, the Oireachtas; Norma Foley (TD), Dáil Éireann, the Oireachtas; Noel Grealish (TD), Dáil Éireann, the Oireachtas; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Niall Collins (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Neale Richmond (TD), Dáil Éireann, the Oireachtas; Mick Barry (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Michael Ring (TD), Dáil Éireann, the Oireachtas; Michael Moynihan (TD), Dáil Éireann, the Oireachtas; Michael McNamara (TD), Dáil Éireann, the Oireachtas; Michael McGrath (TD), Dáil Éireann, the Oireachtas; Michael Lowry (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Michael Creed (TD), Dáil Éireann, the Oireachtas; Michael Collins (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Matt Shanahan (TD), Dáil Éireann, the Oireachtas; Matt Carthy (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Mary Butler (TD), Dáil Éireann, the Oireachtas; Martin Kenny (TD), Dáil Éireann, the Oireachtas; Martin Heydon (TD), Dáil Éireann, the Oireachtas; Martin Browne (TD), Dáil Éireann, the Oireachtas; Mark Ward (TD), Dáil Éireann, the Oireachtas; Marian Harkin (TD), Dáil Éireann, the Oireachtas; Marc Ó Cathasaigh (TD), Dáil Éireann, the Oireachtas; Marc MacSharry (TD), Dáil Éireann, the Oireachtas; Malcolm Noonan (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Kieran O'Donnell (TD), Dáil Éireann, the Oireachtas; Kathleen Funchion (TD), Dáil Éireann, the Oireachtas; Josepha Madigan (TD), Dáil Éireann, the Oireachtas; Johnny Mythen (TD), Dáil Éireann, the Oireachtas; Johnny Guirke (TD), Dáil Éireann, the Oireachtas; John Paul Phelan (TD), Dáil Éireann, the Oireachtas; John McGuinness (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; John Brady (TD), Dáil Éireann, the Oireachtas; Joe O'Brien (TD), Dáil Éireann, the Oireachtas; Joe McHugh (TD), Dáil Éireann, the Oireachtas; Joe Flaherty (TD), Dáil Éireann, the Oireachtas; Joe Carey (TD), Dáil Éireann, the Oireachtas; Joan Collins (TD), Dáil Éireann, the Oireachtas; Jim O'Callaghan (TD), Dáil Éireann, the Oireachtas; Jennifer Whitmore (TD), Dáil Éireann, the Oireachtas; Jennifer Murnane O'Connor (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (TD), Dáil Éireann, the Oireachtas; Jan O'Sullivan (TD), Dáil Éireann, the Oireachtas; James O'Connor (TD), Dáil Éireann, the Oireachtas; James Lawless (TD), Dáil Éireann, the Oireachtas; James Browne (TD), Dáil Éireann, the Oireachtas; Jackie Cahill (TD), Dáil Éireann, the Oireachtas; Jack Chambers (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; Imelda Munster (TD), Dáil Éireann, the Oireachtas; Holly Cairns (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Heather Humphreys (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; Aidan Davitt (Senator), Seanad; Aisling Dolan (Senator), Seanad; Alice-Mary Higgins (Senator), Seanad; Alice-Mary Higgins (Senator), Seanad; Annie Hoey (Senator), Seanad; Barry Ward (Senator), Seanad; Catherine Ardagh (Senator), Seanad; David Norris (Senator), Seanad; Denis O'Donovan (Senator), Seanad; Diarmuid Wilson (Senator), Seanad; Eileen Flynn (Senator), Seanad; Emer Currie (Senator), Seanad; Erin McGreehan (Senator), Seanad; Eugene Murphy (Senator), Seanad; Fintan Warfield (Senator), Seanad; Fiona O'Loughlin (Senator), Seanad; Frances Black (Senator), Seanad; Garret Ahearn (Senator), Seanad; Garrett Ahern (Senator), Seanad; Gerard Craughwell (Senator), Seanad; Gerry Horkan (Senator), Seanad; Jerry Buttimer (Senator), Seanad; Joe O'Reilly (Senator), Seanad; John Cummins (Senator), Seanad; John McGahon (Senator), Seanad; Lisa Chambers (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Lynn Boylan (Senator), Seanad; Lynn Ruane (Senator), Seanad; Mal O'Hara (Senator), Seanad; Malcolm Byrne (Senator), Seanad; Maria Byrne (Senator), Seanad; Marie Sherlock (Senator), Seanad; Mark Daly (Senator), Seanad; Mark Wall (Senator), Seanad; Martin Conway (Senator), Seanad; Mary Fitzpatrick (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Michael McDowell (Senator), Seanad; Micheál Carrigy (Senator), Seanad; Ned O'Sullivan (Senator), Seanad; Niall Blaney (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Ollie Crowe (Senator), Seanad; Paddy Burke (Senator), Seanad; Pat Casey (Senator), Seanad; Paul Daly (Senator), Seanad; Paul Gavan (Senator), Seanad; Pauline O'Reilly (Senator), Seanad; Pippa Hackett (Senator), Seanad; Rebecca Moynihan (Senator), Seanad; Regina Doherty (Senator), Seanad; Robbie Gallagher (Senator), Seanad; Róisín Garvey (Senator), Seanad; Rónán Mullen (Senator), Seanad; Seán Kyne (Senator), Seanad; Shane Cassells (Senator), Seanad; Sharon Keogan (Senator), Seanad; Tim Lombard (Senator), Seanad; Timmy Dooley (Senator), Seanad; Tom Clonan (Senator), Seanad; Victor Boyhan (Senator), Seanad; Vincent P Martin (Senator), Seanad
Intent: Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal Muscular Atrophy (SMA) was endorsed to be included in the NBS programme with a commitment that screening for SMA would start before the end of 2024.
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | This campaign is to place urgency on government to increase the number of conditions screened for |
| — | to be in line with the European average of 18 conditions. They are currently 34 conditions waiting to be assessed for inclusion by the National Screening Advisory Committee. |
2024-05-17
Politician(s) lobbied: Marc MacSharry (TD), Dáil Éireann, the Oireachtas
Intent: Seek Government policy position on people living with Muscular Dystrophy disorder as it applies to wheelchair users in Higher Education Institutions as well as updated government statistics on same.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Communication with office of Marc MacSharry TD regarding parliamentary questions |
2024-01-19
Politician(s) lobbied: Norma Foley (Minister), Department of Education
Intent: Barriers addressed re affordable accessible transport for students with disabilities. ::Barriers addressed re affordable accessible accommodation for students with disabilities.::Barriers addressed re persistent physical access issues at colleges and universities.::Barriers addressed re current requirement of students with disabilities to reapply for state supports at each stage of education. Transitional programme for students with a physical disability introduced so that students receive state supports that follow the person on their educational journey, rather than supports being fragmented as they are currently.
Methods: Event / Reception, Social Media
Details & Methods:
| Method | Description |
|---|---|
| — | Implement measures to provide equity of access to FET and HE to enable all students with disabilities to have the opportunity to attain high levels of educational qualification and combat risk of systemic poverty and unemployment |
| — | fulfilling State's commitments to Article 24 of the UNCRPD |
| — | and UN SDGs. Address barriers to: affordable accessible transport; affordable accessible accommodation; physical access at colleges; requirement to reapply for state supports at each stage of education. |
2022-09-19
Politician(s) lobbied: Frank Feighan (Minister of State), Department of Health; Anne Rabbitte (Minister of State), Department of Health; Stephen Donnelly (Minister), Department of Health; Mary Butler (Minister of State), Department of Health
Intent: 1) Funding for neurology nurses in Budget 2023. 2) The delivery of 100 extra neurology nurses over 5 years.
Methods: Event / Reception
Details & Methods:
| Method | Description |
|---|---|
| — | Attended Neurological Alliance of Ireland audio visual presentation re Campaign for More Neurology Nurses at Leinster House |
| — | as a partner organisation. |
2022-05-18
Politician(s) lobbied: Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Catherine Murphy (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (Minister), Department of Health; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; James Lawless (TD), Dáil Éireann, the Oireachtas; John Brady (TD), Dáil Éireann, the Oireachtas; Simon Harris (TD), Dáil Éireann, the Oireachtas; Steven Matthews (TD), Dáil Éireann, the Oireachtas; Cathal Berry (TD), Dáil Éireann, the Oireachtas; Martin Heydon (TD), Dáil Éireann, the Oireachtas; Patricia Ryan (TD), Dáil Éireann, the Oireachtas; Seán Ó Fearghaíl (TD), Dáil Éireann, the Oireachtas
Intent: Investment in nurse specialists across neurology services in Ireland
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Sought support in securing investment in nurse specialists across neurology services in Ireland |
2022-01-18
Politician(s) lobbied: Micheál Martin (An Taoiseach), Department of the Taoiseach; Simon Coveney (Minister), Department of Foreign Affairs; Darragh O'Brien (Minister), Department of Housing, Local Government and Heritage; Michael McGrath (Minister), Department of Public Expenditure and Reform; Paschal Donohoe (Minister), Department of Finance; Simon Harris (Minister), Department of Further and Higher Education, Innovation and Science; Leo Varadkar (An Tánaiste), Dáil Éireann, the Oireachtas; Stephen Donnelly (Minister), Department of Health; Eamon Ryan (Minister), Department of Transport; Heather Humphreys (Minister), Department of Social Protection; Norma Foley (Minister), Department of Education; Helen McEntee (Minister), Department of Justice and Equality; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas
Intent: Adoption of UN Resolution on 'Addressing the Challenges of Persons Living with a Rare Disease and their Families'.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Signatory to joint letter/email seeking support for UN Resolution on 'Addressing the Challenges of Persons Living with a Rare Disease and their Families'. |
2022-01-18
Politician(s) lobbied: Aengus Ó Snodaigh (TD), Dáil Éireann, the Oireachtas; Aisling Dolan (Senator), Seanad; Alan Dillon (TD), Dáil Éireann, the Oireachtas; Alan Farrell (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Annie Hoey (Senator), Seanad; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Brendan Smith (TD), Dáil Éireann, the Oireachtas; Brendan Howlin (TD), Dáil Éireann, the Oireachtas; Brian Stanley (TD), Dáil Éireann, the Oireachtas; Brian Leddin (TD), Dáil Éireann, the Oireachtas; Bríd Smith (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Catherine Connolly (TD), Dáil Éireann, the Oireachtas; Catherine Ardagh (Senator), Seanad; Catherine Murphy (TD), Dáil Éireann, the Oireachtas; Charles Flanagan (TD), Dáil Éireann, the Oireachtas; Charlie McConalogue (TD), Dáil Éireann, the Oireachtas; Chris Andrews (TD), Dáil Éireann, the Oireachtas; Cian O'Callaghan (TD), Dáil Éireann, the Oireachtas; Ciaran Cannon (TD), Dáil Éireann, the Oireachtas; Claire Kerrane (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Dara Calleary (TD), Dáil Éireann, the Oireachtas; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas; Darren O'Rourke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; David Stanton (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Denise Mitchell (TD), Dáil Éireann, the Oireachtas; Diarmuid Wilson (Senator), Seanad; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Eamon Ryan (TD), Dáil Éireann, the Oireachtas; Eileen Flynn (Senator), Seanad; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (Senator), Seanad; Eugene Murphy (Senator), Seanad; Fergus O'Dowd (TD), Dáil Éireann, the Oireachtas; Francis Noel Duffy (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Heather Humphreys (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Imelda Munster (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; James Lawless (TD), Dáil Éireann, the Oireachtas; James O'Connor (TD), Dáil Éireann, the Oireachtas; James Browne (TD), Dáil Éireann, the Oireachtas; Jerry Buttimer (Senator), Seanad; Jim O'Callaghan (TD), Dáil Éireann, the Oireachtas; Joan Collins (TD), Dáil Éireann, the Oireachtas; Joe Flaherty (TD), Dáil Éireann, the Oireachtas; Joe McHugh (TD), Dáil Éireann, the Oireachtas; John Cummins (Senator), Seanad; John McGahon (Senator), Seanad; John Lahart (TD), Dáil Éireann, the Oireachtas; Johnny Mythen (TD), Dáil Éireann, the Oireachtas; Kieran O'Donnell (TD), Dáil Éireann, the Oireachtas; Lisa Chambers (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Malcolm Byrne (Senator), Seanad; Marc Ó Cathasaigh (TD), Dáil Éireann, the Oireachtas; Mark Ward (TD), Dáil Éireann, the Oireachtas; Martin Conway (Senator), Seanad; Mary Butler (TD), Dáil Éireann, the Oireachtas; Mary Seery Kearney (Senator), Seanad; Matt Carthy (TD), Dáil Éireann, the Oireachtas; Matt Shanahan (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Michael Ring (TD), Dáil Éireann, the Oireachtas; Michael McNamara (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Michael McGrath (TD), Dáil Éireann, the Oireachtas; Micheál Carrigy (Senator), Seanad; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Niall Collins (TD), Dáil Éireann, the Oireachtas; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Noel Grealish (TD), Dáil Éireann, the Oireachtas; Ollie Crowe (Senator), Seanad; Paddy Burke (Senator), Seanad; Padráig Mac Lochlainn (TD), Dáil Éireann, the Oireachtas; Paschal Donohoe (TD), Dáil Éireann, the Oireachtas; Pat Buckley (TD), Dáil Éireann, the Oireachtas; Patrick O'Donovan (TD), Dáil Éireann, the Oireachtas; Patrick Costello (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Paul Kehoe (TD), Dáil Éireann, the Oireachtas; Pauline O'Reilly (Senator), Seanad; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; Peter Burke (TD), Dáil Éireann, the Oireachtas; Peter Fitzpatrick (TD), Dáil Éireann, the Oireachtas; Pippa Hackett (Senator), Seanad; Rebecca Moynihan (Senator), Seanad; Regina Doherty (Senator), Seanad; Richard O'Donoghue (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Robbie Gallagher (Senator), Seanad; Robert Troy (TD), Dáil Éireann, the Oireachtas; Róisín Garvey (Senator), Seanad; Rose Conway-Walsh (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Rónán Mullen (Senator), Seanad; Seán Sherlock (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Seán Canney (TD), Dáil Éireann, the Oireachtas; Seán Haughey (TD), Dáil Éireann, the Oireachtas; Seán Kyne (Senator), Seanad; Seán Fleming (TD), Dáil Éireann, the Oireachtas; Sharon Keogan (Senator), Seanad; Simon Coveney (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Thomas Byrne (TD), Dáil Éireann, the Oireachtas; Thomas Pringle (TD), Dáil Éireann, the Oireachtas; Timmy Dooley (Senator), Seanad; Vincent P Martin (Senator), Seanad; Violet Anne Wynne (TD), Dáil Éireann, the Oireachtas; Willie O'Dea (TD), Dáil Éireann, the Oireachtas; Éamon Ó Cuív (TD), Dáil Éireann, the Oireachtas
Intent: The incorporation of a range of measures within Budget 2022, including increase funding for Personal Assistance, increase core social welfare rates affecting people with MD and their carers; extend medical card eligibility for children aged 16 years and over who have MD; increase funding for housing/accommodation and supports for disabled people; invest in neurology services; update and implement National Rare Disease Plan.
Methods: Social Media
Details & Methods:
| Method | Description |
|---|---|
| — | As part of MDI's Pre-Budget 2022 campaign (see May-August 2021 return also) |
| — | members were invited to take part in a letter-writing campaign to local TDs and senators |
| — | asking for their support for our submission. Key asks include: increase funding for Personal Assistance; increase core social welfare rates affecting people with MD and their carers; extend medical card eligibility for children aged 16 years and over who have MD; increase funding for housing/accommodation and supports etc. |
2021-09-09
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health; Micheál Martin (An Taoiseach), Department of the Taoiseach; Leo Varadkar (An Tánaiste), Dáil Éireann, the Oireachtas; Simon Harris (Minister), Department of Further and Higher Education, Innovation and Science; Paschal Donohoe (Minister), Department of Finance; Michael McGrath (Minister), Department of Public Expenditure and Reform; Heather Humphreys (Minister), Department of Social Protection; Roderic O'Gorman (Minister), Department of Children, Equality, Disability, Integration and Youth; Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth; Norma Foley (Minister), Department of Education; Darragh O'Brien (Minister), Department of Housing, Local Government and Heritage; Josepha Madigan (Minister of State), Department of Education; Niall Collins (Minister of State), Department of Further and Higher Education, Innovation and Science; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Catherine Murphy (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas
Intent: The incorporation of a range of measures within Budget 2022, including: increase funding for Personal Assistance; increase core social welfare rates affecting people with MD and their carers; extend medical card eligibility for children aged 16 years and over who have MD; increase funding for housing/accommodation and supports for disabled people; invest in neurology services; update and implement National Rare Disease Plan.
Methods: Submission
Details & Methods:
| Method | Description |
|---|---|
| — | Sent Muscular Dystrophy Ireland's Pre-Budget 2022 Submission to key government ministers and leaders of opposition. Key asks include: increase funding for Personal Assistance; increase core social welfare rates affecting people with MD and their carers; extend medical card eligibility for children aged 16 years and over who have MD; increase funding for housing/accommodation and supports for disabled people; invest in neurology services; update and implement National Rare Disease Plan. |
2021-09-08
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: Prioritisation for COVID-19 vaccination of children with muscular dystrophy/neuromuscular conditions in the rollout of vaccines for 12 to 15-year-olds.
Methods: Letter
Details & Methods:
| Method | Description |
|---|---|
| — | Call to prioritise children with muscular dystrophy/neuromuscular conditions in the rollout of vaccines for 12 to 15-year-olds. |
2021-05-21
Politician(s) lobbied: Stephen Donnelly (Minister), Department of Health
Intent: The implementation of the commitments relating to Rare Disease in the Programme for Government, 2020::Improved access to new and innovative therapies for those with rare diseases::Expansion of the New Born Screening Programme 4::Develop Rare Disease Research Strategy including maximising potential of national and EU funding as part of the updating of the National Rare Disease Plan::Urgent passage of Research Ethics Bill
Methods: Submission, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Calling for promises in the Programme for Government to be fulfilled and for the delivery of a range of measures relating to rare diseases. |