Politician(s) lobbied: Martin Daly (TD), Dáil Éireann, the Oireachtas; Tom Clonan (Senator), Seanad; Colm Burke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas
Intent: To support policy makers to develop a National Cardiovascular Strategy in the context of the European Commission's Safe Hearts Plan and call to action for all member states.
Methods: MeetingEmail
Details by Method
Meeting
A roundtable discussion facilitated in Dublin's Alex Hotel supported by Red Flag. Held on the 25th February 2026 between politicians and stakeholders; including clinicians and patient advocates.
Email
Email submissions to discussion from those not in attendance for white paper.
Politician(s) lobbied: Aingeal O'Donoghue (Permanent Representative of Ireland to the European Union), Department of Foreign Affairs
Intent: Plans for Ireland's EU Presidency and importance of pro-innovation theme
Methods: Meeting
Details by Method
Meeting
Attended a multistakeholder roundtable meeting at the IIEA on the 16th April.
Politician(s) lobbied: Teresa Costello (Senator), Seanad; Colm Burke (TD), Dáil Éireann, the Oireachtas
Intent: Express the importance of timely access to advanced cancer therapies requires alignment between policy ambition and implementation
Methods: Meeting
Details by Method
Meeting
Invited to attend a World Cancer Day event organised by Vulcan Consulting on behalf of MSD Ireland. The purpose of the event: launch a Cancer Dashboard report for Ireland, developed by the Swedish Institute for Health Economics, an independent research institute which has produced such visual tools for policymakers across EU Member States. Venue and Date: Buswells Hotel, 23-27, Molesworth St, Dublin 2, D02 CT80, on Wednesday, 4 February 2026
Politician(s) lobbied: John Shaw (Assistant Secretary), Department of the Taoiseach
Intent: Contribute to flagship AI government event for EU Presidency
Methods: Meeting
Details by Method
Meeting
Invited to an in-person roundtable discussion in the Department of the Taoiseach on Wednesday, 18 February
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Frank Feighan (Minister of State), Department of Public Expenditure, National Development Plan Delivery and Reform; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (Minister), Department of Health; Jennifer Murnane O'Connor (Minister of State), Department of Health; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Colm Henry (Chief Clinical Officer), Health Service Executive; Robert Watt (Secretary General), Department of Health; Peter Roche (TD), Dáil Éireann, the Oireachtas; Manus Boyle (Senator), Seanad; Maria Byrne (Senator), Seanad; Tom Clonan (Senator), Seanad; Teresa Costello (Senator), Seanad; Nicole Ryan (Senator), Seanad; Johnny Guirke (TD), Dáil Éireann, the Oireachtas; Catherine Ardagh (TD), Dáil Éireann, the Oireachtas; Conor Sheehan (TD), Dáil Éireann, the Oireachtas; Barry Heneghan (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas
Intent: Government adopt key policy recommendations to enable health system readiness for advanced cancer therapies eg Car T and radio ligand therapy (RLT) in Ireland
Methods: Event / ReceptionMeetingEmailInformal communication
Details by Method
Event / Reception
HPP Advanced Therapies Roundtable held at the Royal College of Physicians of Ireland (RCPI), 25 March brought together key stakeholders from across healthcare, patient advocate leaders, policy and academia to discuss the opportunities and challenges associated with health system readiness and patient access to innovative treatments.
Meeting
Informal meeting with some interested public representatives to answer any questions about system shaping for advanced therapies ahead of participation in roundtable on the 3rd March in Buswells Hotel.
Email
Invites to Roundtable and follow up emails from HPP to delegates regarding their outcome whitepaper.
Informal communication
Texts to ensure invites and information received
Politician(s) lobbied: Professor Mary Horgan (Chief Medical Officer), Department of Health
Intent: Plans for development of a National Cardiovascular Strategy and Health System Shaping for Advanced Therapies like Car-T and RLT
Methods: Event / Reception
Details by Method
Event / Reception
IIEA event held at their offices in North Great Georges St.Ireland's EU Presidency: Leading Europe's Public Health Agenda
Politician(s) lobbied: Muiris O’Connor (Assistant Secretary), Department of Health; Gary Tobin (Assistant Secretary), Department of Enterprise, Trade and Employment
Intent: Inclusion of pro-innovation policy in the Life Sciences Strategy to enable health system readiness for advanced cancer therapies eg Car-T and radio ligand therapy (RLT) and fast and fair access to innovative treatments.
Methods: Meeting
Details by Method
Meeting
Consultative Forum focus on “Supporting Better Patient Outcomes Through Innovation and Regulatory Excellence” . Attended on the 24th April from 9:00am to approx. 4:00pm in Department of Health Offices, Miesian Plaza, 50-58 Lower Baggot Street, Dublin 2.
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (Senator), Seanad; Albert Dolan (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Barry Ward (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas
Intent: Implementation of the decision to include SMA in newborn screening
Methods: Email
Details by Method
Email
Ahead of Rare Disease Day to advocate for the inclusion of SMA screening in the national heel prick test
Politician(s) lobbied: Albert Dolan (TD), Dáil Éireann, the Oireachtas; Martin Fraser (Ambassador), Department of Foreign Affairs; Muiris O’Connor (Assistant Secretary), Department of Health; Albert Dolan (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (Minister), Department of Health; Simon Harris (Tánaiste and Minister), Department of Foreign Affairs; Jack Chambers (Minister), Department of Finance
Intent: A National Life Science Strategy encompassing fast and fair access to innovative treatments::Improves wait time for access to innovative treatments for patients in Ireland
Methods: Event / ReceptionInformal communicationMeeting
Details by Method
Event / Reception
Attended an Institute of International and European Affairs on the 18th September and made a comment from the floor about Life Science Strategy and the importance of faster access to innovative treatments.
Event / Reception
British Irish Chamber Conference and dinner. Made a comment from the floor in plenary session relating to competitiveness, fast & fair access to innovation and the importance of a Life Sciences Strategy for Ireland.
Informal communication
Conversation with Dept of Health officials about the value of innovation at the launch of report by National Clinical Trials Oversight Group (NCTOG), Iveagh House on 21st November. Minister for Health launched the report on the night.
Event / Reception
Dublin Chamber of Conference Dinner and had an informal conversation with the Tanaiste and some of his team on the Life Sciences Strategy and valuing innovation.
Event / Reception
Engaged with Irish Ambassador to the UK at IIEA breakfast meeting.
Meeting
Meeting with Deputy Albert Dolan on the 23rd September to discuss Life Science Strategy, National Cardiovascular Strategy and fast and fair access to innovation.
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Shane Moynihan (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas
Intent: Implementation of Life Sciences commitments in programme for government for Rare Diseases::Fast and Fair Access to Innovation and Genetic Screening
Methods: Informal communicationEvent / Reception
Details by Method
Informal communication
Brief informal discussion about improving the timelines regarding access to innovation with Deputy O'Sullivan.
Event / Reception
Made a comment at the meeting that to be competitive, government need to adopt and implement a Life Science Strategy for Ireland, fast and fair access to innovative treatments and the importance of genetic screening.
