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Lobbying Records (Page 1 of 6)
2025-01-14
Politician(s) lobbied: John Lahart (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Tánaiste and Minister), Department of Foreign Affairs; Simon Harris (An Taoiseach), Department of the Taoiseach; James Lawless (Minister of State), Department of Transport; Mary Butler (Minister of State), Department of Health; Jack Chambers (Minister), Department of Finance; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Jennifer Carroll MacNeill (Minister of State), Department of the Taoiseach; Helen McEntee (Minister), Department of Justice; Helen McEntee (Minister), Department of Justice
Intent: Inclusion of rare diseases in Programme for Government - specifically Implementation of new National RD Strategy; Provide timely equitable access to medical innovations, including orphan medicines, advanced therapies, genomics and devices; and Deliver a comprehensive robust and integrated newborn screening system for all.
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Inclusion of rare diseases in new Programme for Government |
2025-01-14
Politician(s) lobbied: Muiris O’Connor (Assistant Secretary), Department of Health
Intent: Meet with personnel at Department of Health to discuss revision to EU Pharma legislation
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | EU Pharma Legislation |
2024-09-20
Politician(s) lobbied: Aengus Ó Snodaigh (TD), Dáil Éireann, the Oireachtas; Aindrias Moynihan (TD), Dáil Éireann, the Oireachtas; Alan Dillon (TD), Dáil Éireann, the Oireachtas; Alan Farrell (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (TD), Dáil Éireann, the Oireachtas; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Brendan Griffin (TD), Dáil Éireann, the Oireachtas; Brendan Howlin (TD), Dáil Éireann, the Oireachtas; Brendan Smith (TD), Dáil Éireann, the Oireachtas; Brian Leddin (TD), Dáil Éireann, the Oireachtas; Brian Stanley (TD), Dáil Éireann, the Oireachtas; Bríd Smith (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Cathal Berry (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Catherine Connolly (TD), Dáil Éireann, the Oireachtas; Catherine Martin (TD), Dáil Éireann, the Oireachtas; Catherine Murphy (TD), Dáil Éireann, the Oireachtas; Charles Flanagan (TD), Dáil Éireann, the Oireachtas; Charlie McConalogue (TD), Dáil Éireann, the Oireachtas; Chris Andrews (TD), Dáil Éireann, the Oireachtas; Christopher O'Sullivan (TD), Dáil Éireann, the Oireachtas; Cian O'Callaghan (TD), Dáil Éireann, the Oireachtas; Ciaran Cannon (TD), Dáil Éireann, the Oireachtas; Claire Kerrane (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Cormac Devlin (TD), Dáil Éireann, the Oireachtas; Damien English (TD), Dáil Éireann, the Oireachtas; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Dara Calleary (TD), Dáil Éireann, the Oireachtas; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas; Darren O'Rourke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; David Stanton (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Denise Mitchell (TD), Dáil Éireann, the Oireachtas; Dessie Ellis (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Éamon Ó Cuív (TD), Dáil Éireann, the Oireachtas; Eamon Ryan (TD), Dáil Éireann, the Oireachtas; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas; Fergus O'Dowd (TD), Dáil Éireann, the Oireachtas; Francis Noel Duffy (TD), Dáil Éireann, the Oireachtas; Frank Feighan (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Heather Humphreys (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Holly Cairns (TD), Dáil Éireann, the Oireachtas; Imelda Munster (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; Jack Chambers (TD), Dáil Éireann, the Oireachtas; Jackie Cahill (TD), Dáil Éireann, the Oireachtas; James Browne (TD), Dáil Éireann, the Oireachtas; James Lawless (TD), Dáil Éireann, the Oireachtas; James O'Connor (TD), Dáil Éireann, the Oireachtas; Jan O'Sullivan (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (TD), Dáil Éireann, the Oireachtas; Jennifer Murnane O'Connor (TD), Dáil Éireann, the Oireachtas; Jennifer Whitmore (TD), Dáil Éireann, the Oireachtas; Jim O'Callaghan (TD), Dáil Éireann, the Oireachtas; Joan Collins (TD), Dáil Éireann, the Oireachtas; Joe Carey (TD), Dáil Éireann, the Oireachtas; Joe Flaherty (TD), Dáil Éireann, the Oireachtas; Joe McHugh (TD), Dáil Éireann, the Oireachtas; Joe O'Brien (TD), Dáil Éireann, the Oireachtas; John Brady (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; John McGuinness (TD), Dáil Éireann, the Oireachtas; John Paul Phelan (TD), Dáil Éireann, the Oireachtas; Kieran O'Donnell (TD), Dáil Éireann, the Oireachtas; Kathleen Funchion (TD), Dáil Éireann, the Oireachtas; Josepha Madigan (TD), Dáil Éireann, the Oireachtas; Johnny Mythen (TD), Dáil Éireann, the Oireachtas; Johnny Guirke (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (An Tánaiste), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Malcolm Noonan (TD), Dáil Éireann, the Oireachtas; Marc MacSharry (TD), Dáil Éireann, the Oireachtas; Marc Ó Cathasaigh (TD), Dáil Éireann, the Oireachtas; Marian Harkin (TD), Dáil Éireann, the Oireachtas; Mark Ward (TD), Dáil Éireann, the Oireachtas; Martin Browne (TD), Dáil Éireann, the Oireachtas; Martin Heydon (TD), Dáil Éireann, the Oireachtas; Martin Kenny (TD), Dáil Éireann, the Oireachtas; Mary Butler (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Matt Carthy (TD), Dáil Éireann, the Oireachtas; Matt Shanahan (TD), Dáil Éireann, the Oireachtas; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Michael Collins (TD), Dáil Éireann, the Oireachtas; Michael Creed (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael Lowry (TD), Dáil Éireann, the Oireachtas; Michael McGrath (TD), Dáil Éireann, the Oireachtas; Michael McNamara (TD), Dáil Éireann, the Oireachtas; Michael Moynihan (TD), Dáil Éireann, the Oireachtas; Michael Ring (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Mick Barry (TD), Dáil Éireann, the Oireachtas; Neale Richmond (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Niall Collins (TD), Dáil Éireann, the Oireachtas; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Noel Grealish (TD), Dáil Éireann, the Oireachtas; Norma Foley (TD), Dáil Éireann, the Oireachtas; Ossian Smyth (TD), Dáil Éireann, the Oireachtas; Pa Daly (TD), Dáil Éireann, the Oireachtas; Padráig Mac Lochlainn (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Paschal Donohoe (TD), Dáil Éireann, the Oireachtas; Pat Buckley (TD), Dáil Éireann, the Oireachtas; Patricia Ryan (TD), Dáil Éireann, the Oireachtas; Patrick Costello (TD), Dáil Éireann, the Oireachtas; Patrick O'Donovan (TD), Dáil Éireann, the Oireachtas; Paul Donnelly (TD), Dáil Éireann, the Oireachtas; Paul Kehoe (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; Peter Burke (TD), Dáil Éireann, the Oireachtas; Peter Fitzpatrick (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Richard Boyd Barrett (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard O'Donoghue (TD), Dáil Éireann, the Oireachtas; Robert Troy (TD), Dáil Éireann, the Oireachtas; Roderic O'Gorman (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Rose Conway-Walsh (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Seán Canney (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Seán Fleming (TD), Dáil Éireann, the Oireachtas; Seán Haughey (TD), Dáil Éireann, the Oireachtas; Seán Ó Fearghaíl (TD), Dáil Éireann, the Oireachtas; Seán Sherlock (TD), Dáil Éireann, the Oireachtas; Simon Coveney (TD), Dáil Éireann, the Oireachtas; Simon Harris (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Steven Matthews (TD), Dáil Éireann, the Oireachtas; Thomas Byrne (TD), Dáil Éireann, the Oireachtas; Thomas Gould (TD), Dáil Éireann, the Oireachtas; Thomas Pringle (TD), Dáil Éireann, the Oireachtas; Verona Murphy (TD), Dáil Éireann, the Oireachtas; Violet Anne Wynne (TD), Dáil Éireann, the Oireachtas; Willie O'Dea (TD), Dáil Éireann, the Oireachtas; Aidan Davitt (Senator), Seanad; Aisling Dolan (Senator), Seanad; Alice-Mary Higgins (Senator), Seanad; Annie Hoey (Senator), Seanad; Barry Ward (Senator), Seanad; Catherine Ardagh (Senator), Seanad; David Norris (Senator), Seanad; Denis O'Donovan (Senator), Seanad; Diarmuid Wilson (Senator), Seanad; Eileen Flynn (Senator), Seanad; Emer Currie (Senator), Seanad; Erin McGreehan (Senator), Seanad; Eugene Murphy (Senator), Seanad; Fintan Warfield (Senator), Seanad; Fiona O'Loughlin (Senator), Seanad; Frances Black (Senator), Seanad; Garret Ahearn (Senator), Seanad; Garrett Ahern (Senator), Seanad; Gerard Craughwell (Senator), Seanad; Gerry Horkan (Senator), Seanad; Jerry Buttimer (Senator), Seanad; Joe O'Reilly (Senator), Seanad; John Cummins (Senator), Seanad; John McGahon (Senator), Seanad; Lisa Chambers (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Lynn Boylan (Senator), Seanad; Lynn Ruane (Senator), Seanad; Lynn Ruane (Senator), Seanad; Malcolm Byrne (Senator), Seanad; Maria Byrne (Senator), Seanad; Marie Sherlock (Senator), Seanad; Mark Daly (Senator), Seanad; Mark Wall (Senator), Seanad; Martin Conway (Senator), Seanad; Mary Fitzpatrick (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Michael McDowell (Senator), Seanad; Micheál Carrigy (Senator), Seanad; Ned O'Sullivan (Senator), Seanad; Niall Blaney (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Ollie Crowe (Senator), Seanad; Paddy Burke (Senator), Seanad; Pat Casey (Senator), Seanad; Paul Daly (Senator), Seanad; Paul Gavan (Senator), Seanad; Pauline O'Reilly (Senator), Seanad; Pippa Hackett (Senator), Seanad; Rebecca Moynihan (Senator), Seanad; Regina Doherty (Senator), Seanad; Robbie Gallagher (Senator), Seanad; Róisín Garvey (Senator), Seanad; Rónán Mullen (Senator), Seanad; Seán Kyne (Senator), Seanad; Shane Cassells (Senator), Seanad; Sharon Keogan (Senator), Seanad; Tim Lombard (Senator), Seanad; Timmy Dooley (Senator), Seanad; Tom Clonan (Senator), Seanad; Victor Boyhan (Senator), Seanad; Vincent P Martin (Senator), Seanad
Intent: Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Rare Diseases Ireland election manifesto launch |
2024-09-20
Politician(s) lobbied: Aengus Ó Snodaigh (TD), Dáil Éireann, the Oireachtas; Aindrias Moynihan (TD), Dáil Éireann, the Oireachtas; Alan Dillon (TD), Dáil Éireann, the Oireachtas; Alan Farrell (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (TD), Dáil Éireann, the Oireachtas; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Brendan Griffin (TD), Dáil Éireann, the Oireachtas; Brendan Howlin (TD), Dáil Éireann, the Oireachtas; Brendan Smith (TD), Dáil Éireann, the Oireachtas; Brian Leddin (TD), Dáil Éireann, the Oireachtas; Brian Stanley (TD), Dáil Éireann, the Oireachtas; Bríd Smith (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Cathal Berry (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Catherine Connolly (TD), Dáil Éireann, the Oireachtas; Catherine Martin (TD), Dáil Éireann, the Oireachtas; Catherine Murphy (TD), Dáil Éireann, the Oireachtas; Charles Flanagan (TD), Dáil Éireann, the Oireachtas; Charlie McConalogue (TD), Dáil Éireann, the Oireachtas; Chris Andrews (TD), Dáil Éireann, the Oireachtas; Christopher O'Sullivan (TD), Dáil Éireann, the Oireachtas; Cian O'Callaghan (TD), Dáil Éireann, the Oireachtas; Ciaran Cannon (TD), Dáil Éireann, the Oireachtas; Claire Kerrane (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Cormac Devlin (TD), Dáil Éireann, the Oireachtas; Damien English (TD), Dáil Éireann, the Oireachtas; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Dara Calleary (TD), Dáil Éireann, the Oireachtas; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas; Darren O'Rourke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; David Stanton (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Denise Mitchell (TD), Dáil Éireann, the Oireachtas; Dessie Ellis (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Éamon Ó Cuív (TD), Dáil Éireann, the Oireachtas; Eamon Ryan (TD), Dáil Éireann, the Oireachtas; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas; Fergus O'Dowd (TD), Dáil Éireann, the Oireachtas; Francis Noel Duffy (TD), Dáil Éireann, the Oireachtas; Frank Feighan (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Heather Humphreys (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Holly Cairns (TD), Dáil Éireann, the Oireachtas; Imelda Munster (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; Jack Chambers (TD), Dáil Éireann, the Oireachtas; Jackie Cahill (TD), Dáil Éireann, the Oireachtas; James Browne (TD), Dáil Éireann, the Oireachtas; James Lawless (TD), Dáil Éireann, the Oireachtas; James O'Connor (TD), Dáil Éireann, the Oireachtas; Jan O'Sullivan (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (TD), Dáil Éireann, the Oireachtas; Jennifer Murnane O'Connor (TD), Dáil Éireann, the Oireachtas; Jennifer Whitmore (TD), Dáil Éireann, the Oireachtas; Jim O'Callaghan (TD), Dáil Éireann, the Oireachtas; Joan Collins (TD), Dáil Éireann, the Oireachtas; Joe Carey (TD), Dáil Éireann, the Oireachtas; Joe Flaherty (TD), Dáil Éireann, the Oireachtas; Joe McHugh (TD), Dáil Éireann, the Oireachtas; Joe O'Brien (TD), Dáil Éireann, the Oireachtas; John Brady (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; John McGuinness (TD), Dáil Éireann, the Oireachtas; John Paul Phelan (TD), Dáil Éireann, the Oireachtas; Kieran O'Donnell (TD), Dáil Éireann, the Oireachtas; Kathleen Funchion (TD), Dáil Éireann, the Oireachtas; Josepha Madigan (TD), Dáil Éireann, the Oireachtas; Johnny Mythen (TD), Dáil Éireann, the Oireachtas; Johnny Guirke (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (An Tánaiste), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Malcolm Noonan (TD), Dáil Éireann, the Oireachtas; Marc MacSharry (TD), Dáil Éireann, the Oireachtas; Marc Ó Cathasaigh (TD), Dáil Éireann, the Oireachtas; Marian Harkin (TD), Dáil Éireann, the Oireachtas; Mark Ward (TD), Dáil Éireann, the Oireachtas; Martin Browne (TD), Dáil Éireann, the Oireachtas; Martin Heydon (TD), Dáil Éireann, the Oireachtas; Martin Kenny (TD), Dáil Éireann, the Oireachtas; Mary Butler (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Matt Carthy (TD), Dáil Éireann, the Oireachtas; Matt Shanahan (TD), Dáil Éireann, the Oireachtas; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Michael Collins (TD), Dáil Éireann, the Oireachtas; Michael Creed (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael Lowry (TD), Dáil Éireann, the Oireachtas; Michael McGrath (TD), Dáil Éireann, the Oireachtas; Michael McNamara (TD), Dáil Éireann, the Oireachtas; Michael Moynihan (TD), Dáil Éireann, the Oireachtas; Michael Ring (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Mick Barry (TD), Dáil Éireann, the Oireachtas; Neale Richmond (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Niall Collins (TD), Dáil Éireann, the Oireachtas; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Noel Grealish (TD), Dáil Éireann, the Oireachtas; Norma Foley (TD), Dáil Éireann, the Oireachtas; Ossian Smyth (TD), Dáil Éireann, the Oireachtas; Pa Daly (TD), Dáil Éireann, the Oireachtas; Padráig Mac Lochlainn (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Paschal Donohoe (TD), Dáil Éireann, the Oireachtas; Pat Buckley (TD), Dáil Éireann, the Oireachtas; Patricia Ryan (TD), Dáil Éireann, the Oireachtas; Patrick Costello (TD), Dáil Éireann, the Oireachtas; Patrick O'Donovan (TD), Dáil Éireann, the Oireachtas; Paul Donnelly (TD), Dáil Éireann, the Oireachtas; Paul Kehoe (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; Peter Burke (TD), Dáil Éireann, the Oireachtas; Peter Fitzpatrick (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Richard Boyd Barrett (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard O'Donoghue (TD), Dáil Éireann, the Oireachtas; Robert Troy (TD), Dáil Éireann, the Oireachtas; Roderic O'Gorman (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Rose Conway-Walsh (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Seán Canney (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Seán Fleming (TD), Dáil Éireann, the Oireachtas; Seán Haughey (TD), Dáil Éireann, the Oireachtas; Seán Ó Fearghaíl (TD), Dáil Éireann, the Oireachtas; Seán Sherlock (TD), Dáil Éireann, the Oireachtas; Simon Coveney (TD), Dáil Éireann, the Oireachtas; Simon Harris (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Steven Matthews (TD), Dáil Éireann, the Oireachtas; Thomas Byrne (TD), Dáil Éireann, the Oireachtas; Thomas Gould (TD), Dáil Éireann, the Oireachtas; Thomas Pringle (TD), Dáil Éireann, the Oireachtas; Verona Murphy (TD), Dáil Éireann, the Oireachtas; Violet Anne Wynne (TD), Dáil Éireann, the Oireachtas; Willie O'Dea (TD), Dáil Éireann, the Oireachtas; Aidan Davitt (Senator), Seanad; Aisling Dolan (Senator), Seanad; Alice-Mary Higgins (Senator), Seanad; Annie Hoey (Senator), Seanad; Barry Ward (Senator), Seanad; Catherine Ardagh (Senator), Seanad; David Norris (Senator), Seanad; Denis O'Donovan (Senator), Seanad; Diarmuid Wilson (Senator), Seanad; Eileen Flynn (Senator), Seanad; Emer Currie (Senator), Seanad; Erin McGreehan (Senator), Seanad; Eugene Murphy (Senator), Seanad; Fintan Warfield (Senator), Seanad; Fiona O'Loughlin (Senator), Seanad; Frances Black (Senator), Seanad; Garret Ahearn (Senator), Seanad; Garrett Ahern (Senator), Seanad; Gerard Craughwell (Senator), Seanad; Gerry Horkan (Senator), Seanad; Jerry Buttimer (Senator), Seanad; Joe O'Reilly (Senator), Seanad; John Cummins (Senator), Seanad; John McGahon (Senator), Seanad; Lisa Chambers (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Lynn Boylan (Senator), Seanad; Lynn Ruane (Senator), Seanad; Lynn Ruane (Senator), Seanad; Malcolm Byrne (Senator), Seanad; Maria Byrne (Senator), Seanad; Marie Sherlock (Senator), Seanad; Mark Daly (Senator), Seanad; Mark Wall (Senator), Seanad; Martin Conway (Senator), Seanad; Mary Fitzpatrick (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Michael McDowell (Senator), Seanad; Micheál Carrigy (Senator), Seanad; Ned O'Sullivan (Senator), Seanad; Niall Blaney (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Ollie Crowe (Senator), Seanad; Paddy Burke (Senator), Seanad; Pat Casey (Senator), Seanad; Paul Daly (Senator), Seanad; Paul Gavan (Senator), Seanad; Pauline O'Reilly (Senator), Seanad; Pippa Hackett (Senator), Seanad; Rebecca Moynihan (Senator), Seanad; Regina Doherty (Senator), Seanad; Robbie Gallagher (Senator), Seanad; Róisín Garvey (Senator), Seanad; Rónán Mullen (Senator), Seanad; Seán Kyne (Senator), Seanad; Shane Cassells (Senator), Seanad; Sharon Keogan (Senator), Seanad; Tim Lombard (Senator), Seanad; Timmy Dooley (Senator), Seanad; Tom Clonan (Senator), Seanad; Victor Boyhan (Senator), Seanad; Vincent P Martin (Senator), Seanad
Intent: Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average numbers across Europe.
Methods: Virtual Meeting, Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Get Rare Aware - Engaging with elected officials on Get Rare Aware campaign |
2024-05-21
Politician(s) lobbied: Aengus Ó Snodaigh (TD), Dáil Éireann, the Oireachtas; Aindrias Moynihan (TD), Dáil Éireann, the Oireachtas; Alan Dillon (TD), Dáil Éireann, the Oireachtas; Alan Farrell (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (TD), Dáil Éireann, the Oireachtas; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Brendan Griffin (TD), Dáil Éireann, the Oireachtas; Brendan Howlin (TD), Dáil Éireann, the Oireachtas; Brendan Smith (TD), Dáil Éireann, the Oireachtas; Brian Leddin (TD), Dáil Éireann, the Oireachtas; Brian Stanley (TD), Dáil Éireann, the Oireachtas; Bríd Smith (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Cathal Berry (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Catherine Connolly (TD), Dáil Éireann, the Oireachtas; Catherine Martin (TD), Dáil Éireann, the Oireachtas; Catherine Murphy (TD), Dáil Éireann, the Oireachtas; Charles Flanagan (TD), Dáil Éireann, the Oireachtas; Charlie McConalogue (TD), Dáil Éireann, the Oireachtas; Chris Andrews (TD), Dáil Éireann, the Oireachtas; Christopher O'Sullivan (TD), Dáil Éireann, the Oireachtas; Cian O'Callaghan (TD), Dáil Éireann, the Oireachtas; Ciaran Cannon (TD), Dáil Éireann, the Oireachtas; Claire Kerrane (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Cormac Devlin (TD), Dáil Éireann, the Oireachtas; Damien English (TD), Dáil Éireann, the Oireachtas; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Dara Calleary (TD), Dáil Éireann, the Oireachtas; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas; Darren O'Rourke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; David Stanton (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Denise Mitchell (TD), Dáil Éireann, the Oireachtas; Dessie Ellis (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Éamon Ó Cuív (TD), Dáil Éireann, the Oireachtas; Eamon Ryan (TD), Dáil Éireann, the Oireachtas; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas; Fergus O'Dowd (TD), Dáil Éireann, the Oireachtas; Francis Noel Duffy (TD), Dáil Éireann, the Oireachtas; Frank Feighan (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Imelda Munster (TD), Dáil Éireann, the Oireachtas; Holly Cairns (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Heather Humphreys (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; Jack Chambers (TD), Dáil Éireann, the Oireachtas; Jackie Cahill (TD), Dáil Éireann, the Oireachtas; James Browne (TD), Dáil Éireann, the Oireachtas; James Lawless (TD), Dáil Éireann, the Oireachtas; Jan O'Sullivan (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (TD), Dáil Éireann, the Oireachtas; Jennifer Murnane O'Connor (TD), Dáil Éireann, the Oireachtas; Jennifer Whitmore (TD), Dáil Éireann, the Oireachtas; Jim O'Callaghan (TD), Dáil Éireann, the Oireachtas; Joan Collins (TD), Dáil Éireann, the Oireachtas; Joe Carey (TD), Dáil Éireann, the Oireachtas; Joe Flaherty (TD), Dáil Éireann, the Oireachtas; Joe McHugh (TD), Dáil Éireann, the Oireachtas; Joe O'Brien (TD), Dáil Éireann, the Oireachtas; John Brady (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; John McGuinness (TD), Dáil Éireann, the Oireachtas; John Paul Phelan (TD), Dáil Éireann, the Oireachtas; Johnny Guirke (TD), Dáil Éireann, the Oireachtas; Johnny Mythen (TD), Dáil Éireann, the Oireachtas; Josepha Madigan (TD), Dáil Éireann, the Oireachtas; Kathleen Funchion (TD), Dáil Éireann, the Oireachtas; Kieran O'Donnell (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Malcolm Noonan (TD), Dáil Éireann, the Oireachtas; Marc MacSharry (TD), Dáil Éireann, the Oireachtas; Marc Ó Cathasaigh (TD), Dáil Éireann, the Oireachtas; Marian Harkin (TD), Dáil Éireann, the Oireachtas; Mark Ward (TD), Dáil Éireann, the Oireachtas; Martin Browne (TD), Dáil Éireann, the Oireachtas; Martin Heydon (TD), Dáil Éireann, the Oireachtas; Martin Kenny (TD), Dáil Éireann, the Oireachtas; Mary Butler (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Matt Carthy (TD), Dáil Éireann, the Oireachtas; Matt Shanahan (TD), Dáil Éireann, the Oireachtas; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Michael Collins (TD), Dáil Éireann, the Oireachtas; Michael Creed (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael McGrath (TD), Dáil Éireann, the Oireachtas; Michael McNamara (TD), Dáil Éireann, the Oireachtas; Michael Moynihan (TD), Dáil Éireann, the Oireachtas; Michael Ring (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Mick Barry (TD), Dáil Éireann, the Oireachtas; Neale Richmond (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Niall Collins (TD), Dáil Éireann, the Oireachtas; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Noel Grealish (TD), Dáil Éireann, the Oireachtas; Norma Foley (TD), Dáil Éireann, the Oireachtas; Ossian Smyth (TD), Dáil Éireann, the Oireachtas; Pa Daly (TD), Dáil Éireann, the Oireachtas; Padráig Mac Lochlainn (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Paschal Donohoe (TD), Dáil Éireann, the Oireachtas; Pat Buckley (TD), Dáil Éireann, the Oireachtas; Patricia Ryan (TD), Dáil Éireann, the Oireachtas; Patrick Costello (TD), Dáil Éireann, the Oireachtas; Patrick O'Donovan (TD), Dáil Éireann, the Oireachtas; Paul Donnelly (TD), Dáil Éireann, the Oireachtas; Paul Kehoe (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; Peter Burke (TD), Dáil Éireann, the Oireachtas; Peter Fitzpatrick (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Richard Boyd Barrett (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard O'Donoghue (TD), Dáil Éireann, the Oireachtas; Robert Troy (TD), Dáil Éireann, the Oireachtas; Roderic O'Gorman (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Rose Conway-Walsh (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Seán Canney (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Seán Fleming (TD), Dáil Éireann, the Oireachtas; Seán Haughey (TD), Dáil Éireann, the Oireachtas; Seán Ó Fearghaíl (TD), Dáil Éireann, the Oireachtas; Seán Sherlock (TD), Dáil Éireann, the Oireachtas; Simon Coveney (TD), Dáil Éireann, the Oireachtas; Simon Harris (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Steven Matthews (TD), Dáil Éireann, the Oireachtas; Thomas Byrne (TD), Dáil Éireann, the Oireachtas; Thomas Gould (TD), Dáil Éireann, the Oireachtas; Thomas Pringle (TD), Dáil Éireann, the Oireachtas; Verona Murphy (TD), Dáil Éireann, the Oireachtas; Violet Anne Wynne (TD), Dáil Éireann, the Oireachtas; Willie O'Dea (TD), Dáil Éireann, the Oireachtas; Aidan Davitt (Senator), Seanad; Aisling Dolan (Senator), Seanad; Alice-Mary Higgins (Senator), Seanad; Annie Hoey (Senator), Seanad; Barry Ward (Senator), Seanad; Catherine Ardagh (Senator), Seanad; David Norris (Senator), Seanad; Denis O'Donovan (Senator), Seanad; Diarmuid Wilson (Senator), Seanad; Eileen Flynn (Senator), Seanad; Emer Currie (Senator), Seanad; Erin McGreehan (Senator), Seanad; Eugene Murphy (Senator), Seanad; Fintan Warfield (Senator), Seanad; Fiona O'Loughlin (Senator), Seanad; Frances Black (Senator), Seanad; Garret Ahearn (Senator), Seanad; Garrett Ahern (Senator), Seanad; Gerard Craughwell (Senator), Seanad; Gerry Horkan (Senator), Seanad; Jerry Buttimer (Senator), Seanad; Joe O'Reilly (Senator), Seanad; John Cummins (Senator), Seanad; John McGahon (Senator), Seanad; Lisa Chambers (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Lynn Boylan (Senator), Seanad; Lynn Ruane (Senator), Seanad; Mal O'Hara (Senator), Seanad; Malcolm Byrne (Senator), Seanad; Maria Byrne (Senator), Seanad; Marie Sherlock (Senator), Seanad; Mark Daly (Senator), Seanad; Mark Wall (Senator), Seanad; Martin Conway (Senator), Seanad; Mary Fitzpatrick (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Michael McDowell (Senator), Seanad; Micheál Carrigy (Senator), Seanad; Ned O'Sullivan (Senator), Seanad; Niall Blaney (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Ollie Crowe (Senator), Seanad; Paddy Burke (Senator), Seanad; Pat Casey (Senator), Seanad; Paul Daly (Senator), Seanad; Paul Gavan (Senator), Seanad; Pauline O'Reilly (Senator), Seanad; Pippa Hackett (Senator), Seanad; Rebecca Moynihan (Senator), Seanad; Regina Doherty (Senator), Seanad; Robbie Gallagher (Senator), Seanad; Róisín Garvey (Senator), Seanad; Rónán Mullen (Senator), Seanad; Seán Kyne (Senator), Seanad; Shane Cassells (Senator), Seanad; Sharon Keogan (Senator), Seanad; Tim Lombard (Senator), Seanad; Timmy Dooley (Senator), Seanad; Tom Clonan (Senator), Seanad; Victor Boyhan (Senator), Seanad; Vincent P Martin (Senator), Seanad
Intent: Support to revisit policy, legislation and process to approve reimbursement of orphan medicines
Methods: Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Meeting on reimbursement approval of orphan medicines |
2024-05-21
Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas
Intent: Policy proposals included in FF manifesto for upcoming EU elections
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | EU manifesto addressing access to and reimbursement of orphan medicines. |
2024-05-21
Politician(s) lobbied: Aengus Ó Snodaigh (TD), Dáil Éireann, the Oireachtas; Aindrias Moynihan (TD), Dáil Éireann, the Oireachtas; Alan Dillon (TD), Dáil Éireann, the Oireachtas; Alan Farrell (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (TD), Dáil Éireann, the Oireachtas; Aodhán Ó Ríordáin (TD), Dáil Éireann, the Oireachtas; Barry Cowen (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Bernard Durkan (TD), Dáil Éireann, the Oireachtas; Brendan Griffin (TD), Dáil Éireann, the Oireachtas; Brendan Howlin (TD), Dáil Éireann, the Oireachtas; Brendan Smith (TD), Dáil Éireann, the Oireachtas; Brian Leddin (TD), Dáil Éireann, the Oireachtas; Brian Stanley (TD), Dáil Éireann, the Oireachtas; Bríd Smith (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Cathal Berry (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Catherine Connolly (TD), Dáil Éireann, the Oireachtas; Catherine Martin (TD), Dáil Éireann, the Oireachtas; Catherine Murphy (TD), Dáil Éireann, the Oireachtas; Charles Flanagan (TD), Dáil Éireann, the Oireachtas; Charlie McConalogue (TD), Dáil Éireann, the Oireachtas; Chris Andrews (TD), Dáil Éireann, the Oireachtas; Christopher O'Sullivan (TD), Dáil Éireann, the Oireachtas; Cian O'Callaghan (TD), Dáil Éireann, the Oireachtas; Ciaran Cannon (TD), Dáil Éireann, the Oireachtas; Claire Kerrane (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Cormac Devlin (TD), Dáil Éireann, the Oireachtas; Damien English (TD), Dáil Éireann, the Oireachtas; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Dara Calleary (TD), Dáil Éireann, the Oireachtas; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas; Darren O'Rourke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; David Stanton (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Denise Mitchell (TD), Dáil Éireann, the Oireachtas; Dessie Ellis (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Éamon Ó Cuív (TD), Dáil Éireann, the Oireachtas; Eamon Ryan (TD), Dáil Éireann, the Oireachtas; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas; Fergus O'Dowd (TD), Dáil Éireann, the Oireachtas; Francis Noel Duffy (TD), Dáil Éireann, the Oireachtas; Frank Feighan (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; Ged Nash (TD), Dáil Éireann, the Oireachtas; Gino Kenny (TD), Dáil Éireann, the Oireachtas; Heather Humphreys (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Holly Cairns (TD), Dáil Éireann, the Oireachtas; Imelda Munster (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; Jack Chambers (TD), Dáil Éireann, the Oireachtas; Jackie Cahill (TD), Dáil Éireann, the Oireachtas; James Browne (TD), Dáil Éireann, the Oireachtas; James Lawless (TD), Dáil Éireann, the Oireachtas; James O'Connor (TD), Dáil Éireann, the Oireachtas; Jan O'Sullivan (TD), Dáil Éireann, the Oireachtas; Jennifer Carroll MacNeill (TD), Dáil Éireann, the Oireachtas; Jennifer Murnane O'Connor (TD), Dáil Éireann, the Oireachtas; Jennifer Whitmore (TD), Dáil Éireann, the Oireachtas; Jim O'Callaghan (TD), Dáil Éireann, the Oireachtas; Joan Collins (TD), Dáil Éireann, the Oireachtas; Joe Carey (TD), Dáil Éireann, the Oireachtas; Joe Flaherty (TD), Dáil Éireann, the Oireachtas; Joe McHugh (TD), Dáil Éireann, the Oireachtas; Joe O'Brien (TD), Dáil Éireann, the Oireachtas; John Brady (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; John McGuinness (TD), Dáil Éireann, the Oireachtas; John Paul Phelan (TD), Dáil Éireann, the Oireachtas; Kieran O'Donnell (TD), Dáil Éireann, the Oireachtas; Kathleen Funchion (TD), Dáil Éireann, the Oireachtas; Josepha Madigan (TD), Dáil Éireann, the Oireachtas; Johnny Mythen (TD), Dáil Éireann, the Oireachtas; Johnny Guirke (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (TD), Dáil Éireann, the Oireachtas; Leo Varadkar (An Tánaiste), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Louise O'Reilly (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Malcolm Noonan (TD), Dáil Éireann, the Oireachtas; Marc MacSharry (TD), Dáil Éireann, the Oireachtas; Marc Ó Cathasaigh (TD), Dáil Éireann, the Oireachtas; Marian Harkin (TD), Dáil Éireann, the Oireachtas; Mark Ward (TD), Dáil Éireann, the Oireachtas; Martin Browne (TD), Dáil Éireann, the Oireachtas; Martin Heydon (TD), Dáil Éireann, the Oireachtas; Martin Kenny (TD), Dáil Éireann, the Oireachtas; Mary Butler (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Matt Carthy (TD), Dáil Éireann, the Oireachtas; Matt Shanahan (TD), Dáil Éireann, the Oireachtas; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Michael Collins (TD), Dáil Éireann, the Oireachtas; Michael Creed (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael Lowry (TD), Dáil Éireann, the Oireachtas; Michael McGrath (TD), Dáil Éireann, the Oireachtas; Michael McNamara (TD), Dáil Éireann, the Oireachtas; Michael Moynihan (TD), Dáil Éireann, the Oireachtas; Michael Ring (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Mick Barry (TD), Dáil Éireann, the Oireachtas; Neale Richmond (TD), Dáil Éireann, the Oireachtas; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Niall Collins (TD), Dáil Éireann, the Oireachtas; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Noel Grealish (TD), Dáil Éireann, the Oireachtas; Norma Foley (TD), Dáil Éireann, the Oireachtas; Ossian Smyth (TD), Dáil Éireann, the Oireachtas; Pa Daly (TD), Dáil Éireann, the Oireachtas; Padráig Mac Lochlainn (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Paschal Donohoe (TD), Dáil Éireann, the Oireachtas; Pat Buckley (TD), Dáil Éireann, the Oireachtas; Patricia Ryan (TD), Dáil Éireann, the Oireachtas; Patrick Costello (TD), Dáil Éireann, the Oireachtas; Patrick O'Donovan (TD), Dáil Éireann, the Oireachtas; Paul Donnelly (TD), Dáil Éireann, the Oireachtas; Paul Kehoe (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Pauline Tully (TD), Dáil Éireann, the Oireachtas; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; Peter Burke (TD), Dáil Éireann, the Oireachtas; Peter Fitzpatrick (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Richard Boyd Barrett (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard Bruton (TD), Dáil Éireann, the Oireachtas; Richard O'Donoghue (TD), Dáil Éireann, the Oireachtas; Robert Troy (TD), Dáil Éireann, the Oireachtas; Roderic O'Gorman (TD), Dáil Éireann, the Oireachtas; Róisín Shorthall (TD), Dáil Éireann, the Oireachtas; Rose Conway-Walsh (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Seán Canney (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Seán Fleming (TD), Dáil Éireann, the Oireachtas; Seán Haughey (TD), Dáil Éireann, the Oireachtas; Seán Ó Fearghaíl (TD), Dáil Éireann, the Oireachtas; Seán Sherlock (TD), Dáil Éireann, the Oireachtas; Simon Coveney (TD), Dáil Éireann, the Oireachtas; Simon Harris (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (TD), Dáil Éireann, the Oireachtas; Steven Matthews (TD), Dáil Éireann, the Oireachtas; Thomas Byrne (TD), Dáil Éireann, the Oireachtas; Thomas Gould (TD), Dáil Éireann, the Oireachtas; Thomas Pringle (TD), Dáil Éireann, the Oireachtas; Verona Murphy (TD), Dáil Éireann, the Oireachtas; Violet Anne Wynne (TD), Dáil Éireann, the Oireachtas; Willie O'Dea (TD), Dáil Éireann, the Oireachtas; Aidan Davitt (Senator), Seanad; Aisling Dolan (Senator), Seanad; Alice-Mary Higgins (Senator), Seanad; Annie Hoey (Senator), Seanad; Barry Ward (Senator), Seanad; Catherine Ardagh (Senator), Seanad; David Norris (Senator), Seanad; Denis O'Donovan (Senator), Seanad; Diarmuid Wilson (Senator), Seanad; Eileen Flynn (Senator), Seanad; Emer Currie (Senator), Seanad; Erin McGreehan (Senator), Seanad; Eugene Murphy (Senator), Seanad; Fintan Warfield (Senator), Seanad; Fiona O'Loughlin (Senator), Seanad; Frances Black (Senator), Seanad; Garret Ahearn (Senator), Seanad; Garrett Ahern (Senator), Seanad; Gerard Craughwell (Senator), Seanad; Gerry Horkan (Senator), Seanad; Jerry Buttimer (Senator), Seanad; Joe O'Reilly (Senator), Seanad; John Cummins (Senator), Seanad; John McGahon (Senator), Seanad; Lisa Chambers (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Lynn Boylan (Senator), Seanad; Lynn Ruane (Senator), Seanad; Lynn Ruane (Senator), Seanad; Malcolm Byrne (Senator), Seanad; Maria Byrne (Senator), Seanad; Marie Sherlock (Senator), Seanad; Mark Daly (Senator), Seanad; Mark Wall (Senator), Seanad; Martin Conway (Senator), Seanad; Mary Fitzpatrick (Senator), Seanad; Mary Seery Kearney (Senator), Seanad; Michael McDowell (Senator), Seanad; Micheál Carrigy (Senator), Seanad; Ned O'Sullivan (Senator), Seanad; Niall Blaney (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Niall Ó Donnghaile (Senator), Seanad; Ollie Crowe (Senator), Seanad; Paddy Burke (Senator), Seanad; Pat Casey (Senator), Seanad; Paul Daly (Senator), Seanad; Paul Gavan (Senator), Seanad; Pauline O'Reilly (Senator), Seanad; Pippa Hackett (Senator), Seanad; Rebecca Moynihan (Senator), Seanad; Regina Doherty (Senator), Seanad; Robbie Gallagher (Senator), Seanad; Róisín Garvey (Senator), Seanad; Rónán Mullen (Senator), Seanad; Seán Kyne (Senator), Seanad; Shane Cassells (Senator), Seanad; Sharon Keogan (Senator), Seanad; Tim Lombard (Senator), Seanad; Timmy Dooley (Senator), Seanad; Tom Clonan (Senator), Seanad; Victor Boyhan (Senator), Seanad; Vincent P Martin (Senator), Seanad
Intent: Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average numbers across Europe.
Methods: Virtual Meeting
Details & Methods:
| Method | Description |
|---|---|
| — | Get Rare Aware - Engaging with elected officials on Get Rare Aware campaign |
2024-05-21
Politician(s) lobbied: Denis Naughten (TD), Dáil Éireann, the Oireachtas
Intent: Secure recruitment of promised resources to enable implementation of published strategy at HSE
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Leaders questions relating to roll out of National Genetics and Genomics Strategy |
2024-05-21
Politician(s) lobbied: David Cullinane (TD), Dáil Éireann, the Oireachtas
Intent: Inclusion of policies and plans to address needs of rare disease community in Ireland in SF document 'Priorities for Change in Health and Social Care' and future election manifesto
Methods: Meeting, Email
Details & Methods:
| Method | Description |
|---|---|
| — | Building awareness unmet needs of rare diseases community in Ireland |
2024-05-21
Politician(s) lobbied: Seán Crowe (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (Senator), Seanad; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Pauline O'Reilly (Senator), Seanad; Neasa Hourigan (TD), Dáil Éireann, the Oireachtas; Denis Naughten (TD), Dáil Éireann, the Oireachtas; Stephen Donnelly (Minister), Department of Health; Breda Smyth (Chief Medical Officer), Department of Health
Intent: Attendance at Rare Diseases Day Conference - Looking to the future for rare diseases - on February 29::Minister to address Rare Diseases Day Conference - Looking to the future for rare diseases
Methods: Email
Details & Methods:
| Method | Description |
|---|---|
| — | Invitation to attend and contribute to Rare Diseases Day Conference - Looking to the future for rare diseases |
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