Lobbyist - Rare Diseases Ireland

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Lobbying Records (Page 1 of 7)

2026-04-30

4 officials

Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health; Bríd Murphy (Adviser to Minister), Department of Health; Stephen Foley (Special Adviser), Department of Health

Intent: Support to host a rare disease themed Associated Presidency Event as part of Ireland's Presidency of the Council of the European Union 2026.

Methods: Email

Details by Method

Emails seeking support for hosting a rare disease event during Ireland's EU Presidency, including clarification on submission process through Dept of Helath for government's call for 'Presidency Associated Events'

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2026-04-30

1 official

Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health

Intent: Support from Ireland for proposal to reinstate the Operating Grants for Health NGOs at the EU

Methods: Email

Details by Method

Email sent to Minister in advance of EU4Health Steering Committee meeting of Feb 24th seeking support for reinstatement of EU operating grants.

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2026-01-21

4 officials

Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health; Bríd Murphy (Adviser to Minister), Department of Health; Stephen Foley (Special Adviser), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health

Intent: Commitment to highlight rare diseases during the upcoming EU Presidency by hosting an official event on Rare Diseases.

Methods: EmailInformal communication

Details by Method

Follow up email to Minister for Health and colleagues to highlight the benefits of hosting a rare disease conference as an official event during Ireland's term as EU Presidency

Informal communication

Side conversations (at launch of NCTOG report) seeking to impress on influencers and decision makers the importance of including rare disease innovation in the EU Presidency agenda, not just from a health perspective but also as a platform to showcase the benefit of investment in innovation and support for industry in Ireland and across Europe.

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2026-01-21

1 official

Politician(s) lobbied: Professor Mary Horgan (Chief Medical Officer), Department of Health

Intent: Commence implementation of National Rare Disease Strategy and establish an Implementation Oversight group with patients/advocates included

Methods: Email

Details by Method

Emails seeking update and information on establishment of the Implementation Oversight Group to monitor implementation of the National Rare Disease Strategy and role for patients & advocates in this group.

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2026-01-21

13 officials

Politician(s) lobbied: Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Anne Rabbitte (Senator), Seanad; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Teresa Costello (Senator), Seanad; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Eileen Lynch (Senator), Seanad; Maria Byrne (Senator), Seanad; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Jennifer Murnane O'Connor (Minister of State), Department of Health; Malcolm Byrne (TD), Dáil Éireann, the Oireachtas

Intent: Acknowledgement of the difficulties getting access to orphan medicines and revision of policies and systems to reduce and eliminate the gaps and delays in the system

Methods: Meeting

Details by Method

Meeting

Follow-up meeting with a small group to discuss the path forward for reform of the reimbursement system and introduction of an early access scheme, and to highlight the link between access to medicines and the pharma industry in Ireland.

Meeting

Meeting of RD All Party Group in the AV Room

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2025-09-20

14 officials

Politician(s) lobbied: Nicole Ryan (Senator), Seanad; Teresa Costello (Senator), Seanad; Tom Clonan (Senator), Seanad; Maria Byrne (Senator), Seanad; Manus Boyle (Senator), Seanad; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Peter Roche (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Martin Daly (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas

Intent: Inclusion of rare disease topics on schedule for Health Committee meetings.

Methods: Email

Details by Method

Email to members of Health Committee asking them to ensure that rare diseases are included in meeting schedules for the Committee.

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2025-09-20

35 officials

Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health; Stephen Foley (Special Adviser), Department of Health; Muiris O’Connor (Assistant Secretary), Department of Health; Simon Harris (Tánaiste and Minister), Department of Foreign Affairs; Thomas Byrne (Minister of State), Department of the Taoiseach; James Lawless (Minister), Department of Further and Higher Education, Research, Innovation and Science; Peter Burke (Minister), Department of Enterprise, Trade and Employment; Catherine Ardagh (TD), Dáil Éireann, the Oireachtas; John Connolly (TD), Dáil Éireann, the Oireachtas; Ryan O'Meara (TD), Dáil Éireann, the Oireachtas; Malcolm Byrne (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Shane Moynihan (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Paul Daly (Senator), Seanad; Maria Byrne (Senator), Seanad; Anne Rabbitte (Senator), Seanad; Teresa Costello (Senator), Seanad; Mark Ward (TD), Dáil Éireann, the Oireachtas; Martin Daly (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; Eileen Lynch (Senator), Seanad; Eamon Scanlon (TD), Dáil Éireann, the Oireachtas; Seamus McGrath (TD), Dáil Éireann, the Oireachtas; Ollie Crowe (Senator), Seanad; Margaret Murphy O'Mahony (Senator), Seanad; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Eileen Flynn (Senator), Seanad; Pauline Tully (Senator), Seanad; Colm Burke (TD), Dáil Éireann, the Oireachtas; Brendan Smith (TD), Dáil Éireann, the Oireachtas; Eoin Hayes (TD), Dáil Éireann, the Oireachtas; Kiera Keogh (TD), Dáil Éireann, the Oireachtas

Intent: Inclusion of rare diseases as a priority for Ireland to showcase during Ireland's EU Presidency in 2026.

Methods: MeetingEmailLetter

Details by Method

Meeting

1 hour meeting of Oireachtas All Party Group on Rare Diseases meeting to discuss importance and reasoning for highlighting rare diseases during EU Presidency

Invitation to selected TDs & Senators to join a meeting discussing plans to request official rare disease event during EU Presidency.

Letter

Letter sent to Ministers for Health requesting official event highlighting rare diseases during EU Presidency - copied to Tánaiste, Minister for Foreign Affairs and Trade, Minister of State at the Department of the Taoiseach, Minister for Further and Higher Education, Research, Innovation and Science, Minister for Enterprise, Tourism and Employment

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2025-05-15

2 officials

Politician(s) lobbied: Jennifer Carroll MacNeill (Minister), Department of Health; Professor Mary Horgan (Chief Medical Officer), Department of Health

Intent: Ministerial support for people living with rare diseases

Methods: Informal communication

Details by Method

Informal communication

Impromptu discussions on importance of publication and implementation of new National Rare Disease Strategy for Rare Diseases as side conversations at unrelated events

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2025-05-15

244 officials

Politician(s) lobbied: Malcolm Byrne (TD), Dáil Éireann, the Oireachtas; Eileen Lynch (Senator), Seanad; Jennifer Carroll MacNeill (Minister), Department of Health; Martin Daly (TD), Dáil Éireann, the Oireachtas; Ryan O'Meara (TD), Dáil Éireann, the Oireachtas; Eamon Scanlon (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Seamus McGrath (TD), Dáil Éireann, the Oireachtas; Ollie Crowe (Senator), Seanad; Margaret Murphy O'Mahony (Senator), Seanad; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Eileen Flynn (Senator), Seanad; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Pauline Tully (Senator), Seanad; Colm Burke (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Aengus Ó Snodaigh (TD), Dáil Éireann, the Oireachtas; Aidan Farrelly (TD), Dáil Éireann, the Oireachtas; Aindrias Moynihan (TD), Dáil Éireann, the Oireachtas; Aisling Dempsey (TD), Dáil Éireann, the Oireachtas; Alan Dillon (TD), Dáil Éireann, the Oireachtas; Alan Kelly (TD), Dáil Éireann, the Oireachtas; Albert Dolan (TD), Dáil Éireann, the Oireachtas; Ann Graves (TD), Dáil Éireann, the Oireachtas; Barry Heneghan (TD), Dáil Éireann, the Oireachtas; Barry Ward (TD), Dáil Éireann, the Oireachtas; Brendan Smith (TD), Dáil Éireann, the Oireachtas; Brian Brennan (TD), Dáil Éireann, the Oireachtas; Brian Stanley (TD), Dáil Éireann, the Oireachtas; Carol Nolan (TD), Dáil Éireann, the Oireachtas; Cathal Crowe (TD), Dáil Éireann, the Oireachtas; Catherine Ardagh (TD), Dáil Éireann, the Oireachtas; Catherine Callaghan (TD), Dáil Éireann, the Oireachtas; Catherine Connolly (TD), Dáil Éireann, the Oireachtas; Cathy Bennett (TD), Dáil Éireann, the Oireachtas; Charles Ward (TD), Dáil Éireann, the Oireachtas; Charlie McConalogue (TD), Dáil Éireann, the Oireachtas; Christopher O'Sullivan (TD), Dáil Éireann, the Oireachtas; Cian O'Callaghan (TD), Dáil Éireann, the Oireachtas; Ciarán Ahern (TD), Dáil Éireann, the Oireachtas; Claire Kerrane (TD), Dáil Éireann, the Oireachtas; Colm Brophy (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Conor D McGuinness (TD), Dáil Éireann, the Oireachtas; Conor Sheehan (TD), Dáil Éireann, the Oireachtas; Cormac Devlin (TD), Dáil Éireann, the Oireachtas; Danny Healy-Rae (TD), Dáil Éireann, the Oireachtas; Dara Calleary (TD), Dáil Éireann, the Oireachtas; Darragh O'Brien (TD), Dáil Éireann, the Oireachtas; Darren O'Rourke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; David Maxwell (TD), Dáil Éireann, the Oireachtas; Denise Mitchell (TD), Dáil Éireann, the Oireachtas; Dessie Ellis (TD), Dáil Éireann, the Oireachtas; Donna McGettigan (TD), Dáil Éireann, the Oireachtas; Donnchadh Ó Laoghaire (TD), Dáil Éireann, the Oireachtas; Duncan Smith (TD), Dáil Éireann, the Oireachtas; Eamon Scanlon (TD), Dáil Éireann, the Oireachtas; Edward Timmins (TD), Dáil Éireann, the Oireachtas; Emer Currie (TD), Dáil Éireann, the Oireachtas; Emer Higgins (TD), Dáil Éireann, the Oireachtas; Eoghan Kenny (TD), Dáil Éireann, the Oireachtas; Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas; Eoin Hayes (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Fionntán Ó Súilleabháin (TD), Dáil Éireann, the Oireachtas; Frank Feighan (TD), Dáil Éireann, the Oireachtas; Gary Gannon (TD), Dáil Éireann, the Oireachtas; George Lawlor (TD), Dáil Éireann, the Oireachtas; Gillian Toole (TD), Dáil Éireann, the Oireachtas; Grace Boland (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Helen McEntee (TD), Dáil Éireann, the Oireachtas; Hildegarde Naughton (TD), Dáil Éireann, the Oireachtas; Holly Cairns (TD), Dáil Éireann, the Oireachtas; Ivana Bacik (TD), Dáil Éireann, the Oireachtas; Jack Chambers (TD), Dáil Éireann, the Oireachtas; James Browne (TD), Dáil Éireann, the Oireachtas; James Geoghegan (TD), Dáil Éireann, the Oireachtas; James Lawless (TD), Dáil Éireann, the Oireachtas; James O'Connor (TD), Dáil Éireann, the Oireachtas; Jen Cummins (TD), Dáil Éireann, the Oireachtas; Jennifer Murnane O'Connor (TD), Dáil Éireann, the Oireachtas; Jennifer Whitmore (TD), Dáil Éireann, the Oireachtas; Jim O'Callaghan (TD), Dáil Éireann, the Oireachtas; Joanna Byrne (TD), Dáil Éireann, the Oireachtas; Joe Cooney (TD), Dáil Éireann, the Oireachtas; Joe Neville (TD), Dáil Éireann, the Oireachtas; John Brady (TD), Dáil Éireann, the Oireachtas; John Clendennen (TD), Dáil Éireann, the Oireachtas; John Connolly (TD), Dáil Éireann, the Oireachtas; John Cummins (TD), Dáil Éireann, the Oireachtas; John Lahart (TD), Dáil Éireann, the Oireachtas; John McGuinness (TD), Dáil Éireann, the Oireachtas; John Paul O'Shea (TD), Dáil Éireann, the Oireachtas; Johnny Guirke (TD), Dáil Éireann, the Oireachtas; Johnny Mythen (TD), Dáil Éireann, the Oireachtas; Kiera Keogh (TD), Dáil Éireann, the Oireachtas; Ken O'Flynn (TD), Dáil Éireann, the Oireachtas; Kevin Boxer Moran (TD), Dáil Éireann, the Oireachtas; Kieran O'Donnell (TD), Dáil Éireann, the Oireachtas; Liam Quaide (TD), Dáil Éireann, the Oireachtas; Louis O'Hara (TD), Dáil Éireann, the Oireachtas; Máire Devine (TD), Dáil Éireann, the Oireachtas; Mairéad Farrell (TD), Dáil Éireann, the Oireachtas; Malcolm Byrne (TD), Dáil Éireann, the Oireachtas; Marian Harkin (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Mark Wall (TD), Dáil Éireann, the Oireachtas; Mark Ward (TD), Dáil Éireann, the Oireachtas; Martin Daly (TD), Dáil Éireann, the Oireachtas; Martin Heydon (TD), Dáil Éireann, the Oireachtas; Martin Kenny (TD), Dáil Éireann, the Oireachtas; Mary Butler (TD), Dáil Éireann, the Oireachtas; Mary Lou McDonald (TD), Dáil Éireann, the Oireachtas; Matt Carthy (TD), Dáil Éireann, the Oireachtas; Mattie McGrath (TD), Dáil Éireann, the Oireachtas; Maurice Quinlivan (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Michael Collins (TD), Dáil Éireann, the Oireachtas; Michael Fitzmaurice (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael Lowry (TD), Dáil Éireann, the Oireachtas; Michael Moynihan (TD), Dáil Éireann, the Oireachtas; Michael Healy-Rae (TD), Dáil Éireann, the Oireachtas; Michael Murphy (TD), Dáil Éireann, the Oireachtas; Micheál Carrigy (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas; Naoise Ó Muirí (TD), Dáil Éireann, the Oireachtas; Naoise O'Cearúil (TD), Dáil Éireann, the Oireachtas; Natasha Newsome Drennan (TD), Dáil Éireann, the Oireachtas; Neale Richmond (TD), Dáil Éireann, the Oireachtas; Niall Collins (TD), Dáil Éireann, the Oireachtas; Niamh Smyth (TD), Dáil Éireann, the Oireachtas; Noel Grealish (TD), Dáil Éireann, the Oireachtas; Noel McCarthy (TD), Dáil Éireann, the Oireachtas; Norma Foley (TD), Dáil Éireann, the Oireachtas; Pa Daly (TD), Dáil Éireann, the Oireachtas; Padráig Mac Lochlainn (TD), Dáil Éireann, the Oireachtas; Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Paschal Donohoe (TD), Dáil Éireann, the Oireachtas; Pat Buckley (TD), Dáil Éireann, the Oireachtas; Pat the Cope Gallagher (TD), Dáil Éireann, the Oireachtas; Patrick O'Donovan (TD), Dáil Éireann, the Oireachtas; Paul Donnelly (TD), Dáil Éireann, the Oireachtas; Paul Nicholas Gogarty (TD), Dáil Éireann, the Oireachtas; Paul Lawless (TD), Dáil Éireann, the Oireachtas; Paul McAuliffe (TD), Dáil Éireann, the Oireachtas; Paul Murphy (TD), Dáil Éireann, the Oireachtas; Paula Butterly (TD), Dáil Éireann, the Oireachtas; Peadar Tóibín (TD), Dáil Éireann, the Oireachtas; Pearse Doherty (TD), Dáil Éireann, the Oireachtas; Peter 'Chap' Cleere (TD), Dáil Éireann, the Oireachtas; Peter Burke (TD), Dáil Éireann, the Oireachtas; Peter Roche (TD), Dáil Éireann, the Oireachtas; Réada Cronin (TD), Dáil Éireann, the Oireachtas; Richard Boyd Barrett (TD), Dáil Éireann, the Oireachtas; Richard O'Donoghue (TD), Dáil Éireann, the Oireachtas; Robert O'Donoghue (TD), Dáil Éireann, the Oireachtas; Robert Troy (TD), Dáil Éireann, the Oireachtas; Roderic O'Gorman (TD), Dáil Éireann, the Oireachtas; Rose Conway-Walsh (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Ruth Coppinger (TD), Dáil Éireann, the Oireachtas; Ryan O'Meara (TD), Dáil Éireann, the Oireachtas; Séamus Healy (TD), Dáil Éireann, the Oireachtas; Seamus McGrath (TD), Dáil Éireann, the Oireachtas; Seán Canney (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Seán Fleming (TD), Dáil Éireann, the Oireachtas; Shónagh Ní Raghallaigh (TD), Dáil Éireann, the Oireachtas; Simon Harris (TD), Dáil Éireann, the Oireachtas; Shane Moynihan (TD), Dáil Éireann, the Oireachtas; Shay Brennan (TD), Dáil Éireann, the Oireachtas; Sinéad Gibney (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; Thomas Byrne (TD), Dáil Éireann, the Oireachtas; Thomas Byrne (TD), Dáil Éireann, the Oireachtas; Thomas Gould (TD), Dáil Éireann, the Oireachtas; Timmy Dooley (TD), Dáil Éireann, the Oireachtas; Tom Brabazon (TD), Dáil Éireann, the Oireachtas; Tony McCormack (TD), Dáil Éireann, the Oireachtas; Verona Murphy (TD), Dáil Éireann, the Oireachtas; William Aird (TD), Dáil Éireann, the Oireachtas; Willie O'Dea (TD), Dáil Éireann, the Oireachtas; Aidan Davitt (Senator), Seanad; Alice-Mary Higgins (Senator), Seanad; Anne Rabbitte (Senator), Seanad; Alison Comyn (Senator), Seanad; Aubrey McCarthy (Senator), Seanad; Cathal Byrne (Senator), Seanad; Chris Andrews (Senator), Seanad; Conor Murphy (Senator), Seanad; Dee Ryan (Senator), Seanad; Diarmuid Wilson (Senator), Seanad; Eileen Flynn (Senator), Seanad; Eileen Lynch (Senator), Seanad; Evanne Ní Chuilinn (Senator), Seanad; Fiona O'Loughlin (Senator), Seanad; Frances Black (Senator), Seanad; Gareth Scahill (Senator), Seanad; Garret Ahearn (Senator), Seanad; Garret Kelleher (Senator), Seanad; Gerard Craughwell (Senator), Seanad; Imelda Goldsboro (Senator), Seanad; Joanne Collins (Senator), Seanad; Joe Conway (Senator), Seanad; Joe Flaherty (Senator), Seanad; Joe O'Reilly (Senator), Seanad; Laura Harmon (Senator), Seanad; Linda Nelson Murray (Senator), Seanad; Lorraine Clifford-Lee (Senator), Seanad; Lynn Ruane (Senator), Seanad; Malcolm Noonan (Senator), Seanad; Manus Boyle (Senator), Seanad; Margaret Murphy O'Mahony (Senator), Seanad; Maria Byrne (Senator), Seanad; Maria McCormack (Senator), Seanad; Mark Daly (Senator), Seanad; Mark Duffy (Senator), Seanad; Martin Conway (Senator), Seanad; Mary Fitzpatrick (Senator), Seanad; Michael McDowell (Senator), Seanad; Mike Kennelly (Senator), Seanad; Nessa Cosgrove (Senator), Seanad; Niall Blaney (Senator), Seanad; Nicole Ryan (Senator), Seanad; Nikki Bradley (Senator), Seanad; Noel O'Donovan (Senator), Seanad; Ollie Crowe (Senator), Seanad; Paraic Brady (Senator), Seanad; Pat Casey (Senator), Seanad; Patricia Stephenson (Senator), Seanad; Paul Daly (Senator), Seanad; Pauline Tully (Senator), Seanad; Rónán Mullen (Senator), Seanad; Robbie Gallagher (Senator), Seanad; Sarah O'Reilly (Senator), Seanad; Seán Kyne (Senator), Seanad; Shane Curley (Senator), Seanad; Sharon Keogan (Senator), Seanad; Teresa Costello (Senator), Seanad; Tom Clonan (Senator), Seanad; Victor Boyhan (Senator), Seanad

Intent: Understanding of the rare disease landscape and the priorities of people living with rare diseases.

Methods: MeetingEmail

Details by Method

Meeting

1 hour meeting of Oireachtas All Party Group on Rare Diseases meeting to mark Rare Disease Day in the AV Room of Leinster House

Invitation to attend Oireachtas All Party Group on Rare Diseases meeting to mark Rare Disease Day

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2025-01-14

12 officials

Politician(s) lobbied: John Lahart (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Micheál Martin (Tánaiste and Minister), Department of Foreign Affairs; Simon Harris (An Taoiseach), Department of the Taoiseach; James Lawless (Minister of State), Department of Transport; Mary Butler (Minister of State), Department of Health; Jack Chambers (Minister), Department of Finance; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Paschal Donohoe (Minister), Department of Public Expenditure, NDP Delivery and Reform; Jennifer Carroll MacNeill (Minister of State), Department of the Taoiseach; Helen McEntee (Minister), Department of Justice; Helen McEntee (Minister), Department of Justice

Intent: Inclusion of rare diseases in Programme for Government - specifically Implementation of new National RD Strategy; Provide timely equitable access to medical innovations, including orphan medicines, advanced therapies, genomics and devices; and Deliver a comprehensive robust and integrated newborn screening system for all.

Methods: Email

Details by Method

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