Spina Bifida Hydrocephalus Ireland

Total Lobbying Efforts: 19

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Lobbying Records (Page 1 of 2)

2024-09-12
Current/Former DPOWhat is lobbying? (FAQ)
Politician(s) lobbied: Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas
Intent: Try to have the first decision reinstated
Methods: Email
Details & Methods:
MethodDescription
A house was promised by a county council to a member and this promise was later reneged on
2024-09-12
Politician(s) lobbied: Pat Treanor (Councillor), Monaghan County Council
Intent: Campaign on behalf of family to receive their resident status
Methods: Phone call
Details & Methods:
MethodDescription
Seeking family Status
2024-09-11
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas
Intent: The intended results is to secure funding for the addition of a wet room to their home
Methods: Phone call
Details & Methods:
MethodDescription
in relation to the adaption grant
2024-01-10
Politician(s) lobbied: Mick Barry (TD), Dáil Éireann, the Oireachtas
Intent: Emails and conversation around housing for an individual in need
Methods: Email
Details & Methods:
MethodDescription
Emails and conversation around housing for an individual in need
2024-01-10
Politician(s) lobbied: Simon Harris (Minister), Department of Further and Higher Education, Innovation and Science; Norma Foley (Minister), Department of Education; Josepha Madigan (Minister of State), Department of Education
Intent: To raise awareness of Spina Bifida and Hydrocephalus and ask for SB/H Awareness week to be recognised in all Irish schools.
Methods: Letter
Details & Methods:
MethodDescription
Letters to government officials asking for Spina Bifida and Hydrocephalus Awareness week be recognised across all Irish schools.
2022-01-12
Politician(s) lobbied: Anne Rabbitte (Minister of State), Department of Children, Equality, Disability, Integration and Youth
Intent: Commitment by government to provide funding in 2022
Methods: Meeting
Details & Methods:
MethodDescription
Urgent requirement for funding to improve surgical waiting times for children with spina bifida hydrocephalus
2021-09-17
Politician(s) lobbied: Patricia Ryan (TD), Dáil Éireann, the Oireachtas
Intent: Raise awareness and try to get TD's to resolve the issue
Methods: Virtual Meeting
Details & Methods:
MethodDescription
Children’s access to disability services in the Kildare area
2021-09-17
Politician(s) lobbied: David Cullinane (TD), Dáil Éireann, the Oireachtas
Intent: Raise awareness of the issue that SBHI are experiencing
Methods: Virtual Meeting
Details & Methods:
MethodDescription
Access to children’s health services in Ireland
2021-04-30
Politician(s) lobbied: Ivana Bacik (Senator), Seanad; Michael Moynihan (TD), Dáil Éireann, the Oireachtas; John Paul Phelan (Minister of State), Department of Housing, Planning and Local Government; Erin McGreehan (Senator), Seanad; Alan Kelly (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas
Intent: PQ’s sent to political representatives and responses received Letter to Department of Health sent regarding Slainte Care and its’ services and response received We wrote to Disability Matters Committees and Health Committees for potential meetings. Letter to HSE sent regarding National Model of Care and transitioning and the difficulties arising and response received.
Methods: Meeting
Details & Methods:
MethodDescription
Rights for persons with spina bifida and/or hydrocephalus
2019-08-30
Politician(s) lobbied: Joe McHugh (Minister), Department of Education and Skills
Intent: To see a clarification for SNAs regarding their role in this area, and to see proper training provided for all SNAs in the relevant areas.
Methods: Letter
Details & Methods:
MethodDescription
We wrote to the Minister for Education regarding the role of SNAs and issues arising for our service users such as catheterisation in schools