Politician(s) lobbied: Ged Nash (TD), Dáil Éireann, the Oireachtas
Intent: allocation of resources to enable persons living with Spina Bifida and/or Hydrocephalus to be accommodated appropriately when their primary care (commonly a parent) dies
Methods: Email
Details by Method
Method not specified
Government policy on appropriate allocation of resources to enable persons living with Spina Bifida and/or Hydrocephalus to be accommodated appropriately when their primary care (commonly a parent) dies.
Politician(s) lobbied: Darragh O'Brien (Minister), Department of Transport
Intent: Hoping the minister could ensure that proper procedures were put in place for SBHI members and members of the wider public when travelling through this airport. Contact the airport on our members behalf to express concern with the treatment of an Irish citizen when travelling.
Methods: Email
Details by Method
Method not specified
Drawing the minister's attention to an incident in Leeds Bradford Airport where a SBHI member was treated appallingly by airport staff. He was left very upset and embarrassed by the incident.
Politician(s) lobbied: Unknown
Intent: Unknown
Methods: Unknown
Details by Method
Method not specified
Unknown
Politician(s) lobbied: Eoin Ó Broin (TD), Dáil Éireann, the Oireachtas
Intent: Try to have the first decision reinstated
Methods: Email
Details by Method
Method not specified
A house was promised by a county council to a member and this promise was later reneged on
Politician(s) lobbied: Pat Treanor (Councillor), Monaghan County Council
Intent: Campaign on behalf of family to receive their resident status
Methods: Phone call
Details by Method
Method not specified
Seeking family Status
Politician(s) lobbied: Colm Burke (TD), Dáil Éireann, the Oireachtas
Intent: The intended results is to secure funding for the addition of a wet room to their home
Methods: Phone call
Details by Method
Method not specified
in relation to the adaption grant
Politician(s) lobbied: Unknown
Intent: Unknown
Methods: Unknown
Details by Method
Method not specified
Unknown
Politician(s) lobbied: Mick Barry (TD), Dáil Éireann, the Oireachtas
Intent: Emails and conversation around housing for an individual in need
Methods: Email
Details by Method
Method not specified
Emails and conversation around housing for an individual in need
Politician(s) lobbied: Simon Harris (Minister), Department of Further and Higher Education, Innovation and Science; Norma Foley (Minister), Department of Education; Josepha Madigan (Minister of State), Department of Education
Intent: To raise awareness of Spina Bifida and Hydrocephalus and ask for SB/H Awareness week to be recognised in all Irish schools.
Methods: Letter
Details by Method
Method not specified
Letters to government officials asking for Spina Bifida and Hydrocephalus Awareness week be recognised across all Irish schools.
Politician(s) lobbied: Unknown
Intent: Unknown
Methods: Unknown
Details by Method
Method not specified
Unknown
