The Irish Hospice Foundation

Politician(s) lobbied: Rachel Flynn (Director of Health Information and Standards), Health Information and Quality Authority; Angela Fitzgerald (Chief Executive Officer), Health Information and Quality Authority

Intent: Request to consider the next National End of Life Survey, what additional points should be included and discuss in more detail the plans to progress the next survey

Methods: Letter

Politician(s) lobbied: Brendan Smith (TD), Dáil Éireann, the Oireachtas; Sinéad Gibney (TD), Dáil Éireann, the Oireachtas; Seán Crowe (TD), Dáil Éireann, the Oireachtas; Fiona O'Loughlin (Senator), Seanad; Cormac Devlin (TD), Dáil Éireann, the Oireachtas; David Maxwell (TD), Dáil Éireann, the Oireachtas; Ruairí Ó Murchú (TD), Dáil Éireann, the Oireachtas; Erin McGreehan (TD), Dáil Éireann, the Oireachtas; Malcolm Noonan (Senator), Seanad; Niall Blaney (Senator), Seanad; Cathy Bennett (TD), Dáil Éireann, the Oireachtas; Garret Kelleher (Senator), Seanad; Brian Stanley (TD), Dáil Éireann, the Oireachtas; Verona Murphy (TD), Dáil Éireann, the Oireachtas

Intent: Further opportunities to engage on the issues that were raised at the North South Interparliamentary Association including the value of conversations around advance care planning and the importance of recognising the role health care professionals play in delivering a palliative care approach and our call for a Register of Advance Healthcare Directives.

Methods: Email

Politician(s) lobbied: Emer Higgins (Minister of State), Department of Children, Equality, Disability, Integration and Youth

Intent: We were requesting to be involved in the review of the Assisted Decision Making Capacity Act legislation as well as our highlighting our call for the need for the establishment of an Advance Healthcare Directive Register

Methods: Email

Politician(s) lobbied: Aubrey McCarthy (Senator), Seanad

Intent: As a key champion for the work that Irish Hospice Foundation do we wanted to extend a complimentary invitation to attend our End of Life Forum in September 2026

Methods: Email

Politician(s) lobbied: Jennifer Murnane O'Connor (Minister of State), Department of Health

Intent: Minister to open and attend the Irish Hospice Foundation National Bereavement Forum.

Methods: Letter

Politician(s) lobbied: Liam Callaghan (Councillor), Roscommon County Council; Gareth Scahill (Senator), Seanad

Intent: Raising awareness about the work of Irish Hospice Foundation and specifically in arts, culture and engagement

Methods: Event / Reception

Politician(s) lobbied: Micheál Martin (Taoiseach), Dáil Éireann, the Oireachtas

Intent: The Taoiseach to open and launch the IHF End of Life Forum in September 2026

Methods: Letter

Politician(s) lobbied: Kieran O'Donnell (Minister of State), Department of Health

Intent: Seek his support for the continuation of the Caru programme and expansion of it with a more specific focus on Advance Care Planning

Methods: MeetingEmail

Politician(s) lobbied: Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Martin Daly (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Peter Roche (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas

Intent: Opportunity to present in front of the members of the Oireachtas Committee on Health

Methods: Email

Politician(s) lobbied: Pádraig Rice (TD), Dáil Éireann, the Oireachtas; Pádraig O'Sullivan (TD), Dáil Éireann, the Oireachtas; Marie Sherlock (TD), Dáil Éireann, the Oireachtas; Martin Daly (TD), Dáil Éireann, the Oireachtas; Colm Burke (TD), Dáil Éireann, the Oireachtas; Michael Cahill (TD), Dáil Éireann, the Oireachtas; Sorca Clarke (TD), Dáil Éireann, the Oireachtas; David Cullinane (TD), Dáil Éireann, the Oireachtas; Peter Roche (TD), Dáil Éireann, the Oireachtas

Intent: Confirmation of the opportunity to present the findings from this report at the Oireachtas Committee on Health.

Methods: Email