Lobbying Records (Page 1 of 15)
GSK
Current/Former DPOWhat is lobbying? (FAQ)2025-01-20
Intent: To thank deputies and senators for attending session in AV room, to remind them that adult vaccination delivers a return on investment and to ask for their help lobbying for adult vaccination
Details: To demonstrate return on investment from adult vaccination
Officials: Garrett Ahern, Tim Lombard, Fiona O'Loughlin, Diarmuid Wilson, Lisa Chambers, Erin McGreehan, Catherine Ardagh, Robbie Gallagher, ...
Methods: Email to the attendees of briefing on research findings in AV Room - Email
Dyslexia Association of Ireland
2025-01-13
Intent: To raise awareness of Oireachtas members on the urgent need for extra time for students with dyslexia and other learning difficulties when sitting State Exams (Junior Cycle and Leaving Certificate) as part of the accommodations offered within the RACE (Reasonable Accommodations at the Certificate Examinations) scheme as administered by the State Examinations Commission (SEC).
Details: Dyslexia Awareness Month Presentation for Oireachtas Members on The Need for Extra Time in State Exams
Officials: Paul Coghlan, Martin Conway, Gerard Craughwell, Mark Daly, Denis Landy, Terry Leyden, Rónán Mullen, Catherine Noone, ...
Methods: Meeting for Oireachtas members on October 8th 2024 at Buswells Hotel, as part of Dyslexia Awareness Month. - Meeting, Invitations to Oireachas members before the event, and distribution of PDF of briefing to Oireachtas members (after the event). - Email
National Traveller MABS
2024-09-26
Intent: T.D.'s and Senators to have a copy of the NTMABS research report 'Financial Unwellness' and to have it's findings considered as part of the Financial Literacy Strategy currently being prepared.
Details: An copy of NTMABS research report into financial literacy in the Traveller community was sent via email to all T.D.'s and Senators
Officials: Chris Andrews, Ivana Bacik, Richard Boyd Barrett, Mick Barry, Cathal Berry, John Brady, Colm Brophy, James Browne, ...
Methods: 1 email was sent to all T.D.'s and Senators on the 26/09/24 with a pdf of the report attached. - Email
Vulcan Consulting Limited
Current/Former DPOWhat is lobbying? (FAQ)2024-09-21
Intent: Awareness raising of the proposed legislation's possible impact on the thoroughbred horse racing and breeding sector
Details: Gambling Regulation Bill 2022
Officials: Garrett Ahern, Tim Lombard, Timmy Dooley, Robbie Gallagher, John McGahon, Martin Heydon
Methods: Meeting, Phone call
Rare Diseases Ireland
2024-09-20
Intent: Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Details: Rare Diseases Ireland election manifesto launch
Officials: Aengus Ó Snodaigh, Aindrias Moynihan, Alan Dillon, Alan Farrell, Alan Kelly, Anne Rabbitte, Aodhán Ó Ríordáin, Barry Cowen, ...
Methods: Presentation of Manifesto for Rare Diseases - Meeting
Rare Diseases Ireland
2024-09-20
Intent: Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average numbers across Europe.
Details: Get Rare Aware - Engaging with elected officials on Get Rare Aware campaign
Officials: Aengus Ó Snodaigh, Aindrias Moynihan, Alan Dillon, Alan Farrell, Alan Kelly, Anne Rabbitte, Aodhán Ó Ríordáin, Barry Cowen, ...
Methods: Online meetings (2x in May, 2x in June) detailing need for expanded newborn bloodspot screening panel in Ireland. - Virtual Meeting, Jun 25 meeting with TDs & Senators in AV Room to discuss importance of newborn bloodspot screening and the need to expand the system in Ireland. - Meeting
National Infertility Support and Information Group
Current/Former DPOWhat is lobbying? (FAQ)2024-09-20
Intent: NISIG submitted pre budget submission for 2025, highlighting the need to expand the eligibility criteria for the publicly funded IVF scheme to be more inclusive to include Donor. Also to increase the resourcing for the fertility hubs to mitigate against delays in treating patients in a time sensitive manner. NISIG contacted key DPO's to personally thank them for their work on and support for the first comprehensive AHR legislation regulating fertility treatment in Ireland, passed in June 2024.
Details: NISIG is the only Irish charity supporting and advocating on behalf of those experiencing fertility issues. One of our primary aims is to ensure that equality is secured, and the human rights of children conceived using AHR, their intended parents and families are protected and advanced in legislati, ...
Officials: Stephen Donnelly, Marie Sherlock, Neasa Hourigan, Ivana Bacik, Cathal Crowe, Bernard Durkan, David Cullinane, Gino Kenny, ...
Methods: NISIG emailed Senator Marie Sherlock asking her to highlight some issues during the Seanad debate on the AHR Legislation regarding the public funding for IVF phase one issues, the timeline for the expansion of public funding to incorporate donor and the review of the age criteria, and also to highlight the longer waiting times in relation to some of the fertility hubs. - Email, NISIG emailed Minister Stephen Donnelly, as part of our remit as a representative group, to personally thank him for his work on and support for the introduction of the first comprehensive AHR legislation regulating the fertility landscape in Ireland, which was passed in June 2024. - Email, NISIG emailed TD Neasa Hourigan, as part of our remit as a representative group, to personally thank her for her support for the introduction of comprehensive AHR legislation regulating the fertility landscape in Ireland, which was passed in June 2024. - Email, ...
Muscular Dystrophy Society of Ireland GLC
2024-09-20
Intent: Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal Muscular Atrophy (SMA) was endorsed to be included in the NBS programme with a commitment that screening for SMA would start before the end of 2024.
Details: This campaign is to place urgency on government to increase the number of conditions screened for, to be in line with the European average of 18 conditions. They are currently 34 conditions waiting to be assessed for inclusion by the National Screening Advisory Committee.
Officials: Aengus Ó Snodaigh, Alan Dillon, Alan Kelly, Aodhán Ó Ríordáin, Bernard Durkan, Brendan Howlin, Brian Leddin, Bríd Smith, ...
Methods: This campaign is led by Rare Diseases Ireland. MDI are one of the supporters of the campaign along with other patient organisations for rare diseases. A meeting at the Oireachtas was held on 25 June, chaired by John Lahart (TD). Rare disease patients, families and advocates were welcomed to the Dáil to discuss the need to expand Ireland’s newborn screening ‘heel prick test’. - Meeting
Family Carers Ireland
2024-09-20
Intent: Support for FCI budget 2025 proposal to better support Family Carers in Ireland
Details: FCI Pre Budget proposal/asks
Officials: Norma Foley, Brendan Griffin, Pa Daly, Danny Healy-Rae, Michael Healy-Rae, Carol Nolan, Brian Stanley, Mary Lou McDonald, ...
Methods: Norma Foley - Email, Brendan Griffin - Email, Pa Daly - Email, ...
Vodafone Ireland
2024-09-20
Intent: Meeting to discuss Vodafone's proposals for a VAT reduction on internet access services as a cost of living measure and to support increased connectivity to our communities.
Details: VAT Reduction on Internet Access Services
Officials: Peter Burke, Michael McGrath, Louise O'Reilly, Eamon Ryan, Ossian Smyth, Heather Humphreys, Paschal Donohoe, Kevin Barrett, ...
Methods: Vodafone Pre-Budget Submission calling for VAT on internet access services to be reduced - Submission, Meetings to discuss Vodafone Pre-Budget Submission calling for VAT on internet access services to be reduced - Meeting