The Union of Students in Ireland
2025-05-20
Intent: Get TDs to attend our lobby day
Details: Lobby day email
Officials
Official Profile
Most Recent Title
TD
Most Recent Public Body
Dáil Éireann, the Oireachtas
First Seen
21 October 2015
Last Seen
20 May 2025
Observed Titles
MinisterTD
Observed Public Bodies
Department of Education and SkillsDáil Éireann, the Oireachtas
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Lobbying Records (Page 1 of 71)
Intent: Signatures on a statement of support for Baha'i women in Iran
Details: We emailed the 220 public representatives - TDs and Senators - to ask them to sign a statement - 'Join UN Rapporteurs to help protect Baha'i Women in Iran.'
Officials
Methods
We emailed the 220 public representatives - TDs and Senators - to ask them to sign a statement - 'Join UN Rapporteurs to help protect Baha'i Women in Iran.' - Email
Dyslexia Association of Ireland
2025-01-13
Intent: To raise awareness of Oireachtas members on the urgent need for extra time for students with dyslexia and other learning difficulties when sitting State Exams (Junior Cycle and Leaving Certificate) as part of the accommodations offered within the RACE (Reasonable Accommodations at the Certificate Examinations) scheme as administered by the State Examinations Commission (SEC).
Details: Dyslexia Awareness Month Presentation for Oireachtas Members on The Need for Extra Time in State Exams
Officials
Methods
Invitations to Oireachas members before the event, and distribution of PDF of briefing to Oireachtas members (after the event). - EmailMeeting for Oireachtas members on October 8th 2024 at Buswells Hotel, as part of Dyslexia Awareness Month. - Meeting
Rare Diseases Ireland
2024-09-20
Intent: Inclusion of rare disease priorities in political party manifestos.::Inclusion of rare disease priorities in programme for government following next general election.
Details: Rare Diseases Ireland election manifesto launch
Officials
Methods
Presentation of Manifesto for Rare Diseases - Meeting
Rare Diseases Ireland
2024-09-20
Intent: Increased knowledge and understanding of unmet needs of people living with rare diseases.::PQs to Minister to seek commitment to deliver expanded newborn bloodspot screening program.::Expansion of newborn bloodspot screening panel to bring us inline (at minimum) with average numbers across Europe.
Details: Get Rare Aware - Engaging with elected officials on Get Rare Aware campaign
Officials
Methods
Jun 25 meeting with TDs & Senators in AV Room to discuss importance of newborn bloodspot screening and the need to expand the system in Ireland. - MeetingOnline meetings (2x in May, 2x in June) detailing need for expanded newborn bloodspot screening panel in Ireland. - Virtual Meeting
Intent: Expansion of the programme to increase the number of conditions screened for, to be in line with the European average of 18 conditions. In 2022, the condition, ADIA-SCID was added to the NBS programme, however this hasn’t been fully implemented yet. In November 2023, Spinal Muscular Atrophy (SMA) was endorsed to be included in the NBS programme with a commitment that screening for SMA would start before the end of 2024.
Details: This campaign is to place urgency on government to increase the number of conditions screened for, to be in line with the European average of 18 conditions. They are currently 34 conditions waiting to be assessed for inclusion by the National Screening Advisory Committee.
Officials
Methods
This campaign is led by Rare Diseases Ireland. MDI are one of the supporters of the campaign along with other patient organisations for rare diseases. A meeting at the Oireachtas was held on 25 June, chaired by John Lahart (TD). Rare disease patients, families and advocates were welcomed to the Dáil to discuss the need to expand Ireland’s newborn screening ‘heel prick test’. - Meeting
Society of Chartered Surveyors Ireland
2024-09-20
Intent: Raise awareness of the research and findings of the report available at SCSI.ie
Details: Email summary of SCSI reports published and available on the SCSI website
Officials
Methods
Email
Intent: Having them sign the above statement
Details: Emailed all TDs and Senators asking them to sign a statement calling on the Iranian government to cease persecution of Baha'is, women and minorities in Iran.
Officials
Methods
Emailed all TDs and Senators asking them to sign a statement calling on the Iranian government to cease persecution of Baha'is, women and minorities in Iran. - Email
Ireland Active
2024-09-19
Intent: For the inclusion of a gym/swim Tax Credit 2025 Budget ::For the inclusion of a gym/swim Tax Credit in the 2025 Budget
Details: Tax Credit Submission for Gym and Swimming Pool Fees
Officials
Methods
Follow-up email requesting meeting to present REDC poll showing data on how a personal tax credit via med1 form for the uptake in physical activity via gym/swim membership would increase inactive people to take up personal exercise and swimming if they had a financial incentive. - Email
Federation of Early Childhood Providers
2024-09-12
Intent: communication & understand for what providers go through
Details: Core Funding, Business suffering,
Officials
Methods
Budget submission - Emailcore funding - Social Media
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