No current committee memberships matched for this official.
Intent: Reimbursement of Friedriech's ataxia drug Skyclarys
Details: Letter to HSE leadership re reimbursement of Skyclarys for people living with Freidriech's ataxia
Intent: Attendance at upcoming Associated EU Presidency on Rare Diseases on Nov 13
Details: Invitation to attend RDI's associated EU Presidency Event
Intent: Supporting discussions to ensure Skyclarys (omalexolone) becomes available to patients in Ireland, in line with many European countries
Details: Reimbursement decision for the treatment of Friederich's ataxia
Intent: Engagement with relevant stakeholders in relation to negotiations for a new Framework Agreement on the Supply and Pricing of Medicines, noting the priorities of MFI members, and concluding an agreement that ensures the supply of affordable and accessible medicines for Irish patients.
Details: Engagement with officials in relation to the Framework Agreement on the Supply and Pricing of Medicines
Intent: Improved audiology and eye care services in the community
Details: Provision of audiology services and eye care services
Intent: List of medicines that pharmacists can prescribe.
Details: pharmacy prescribing
Intent: Engagement with relevant stakeholders in relation to negotiations for a new Framework Agreement on the Supply and Pricing of Medicines, noting the priorities of MFI members, and the need to deliver an agreement that ensures the supply of affordable and accessible medicines for Irish patients.
Details: Engagement with officials in relation to the Framework Agreement on the Supply and Pricing of Medicines
Intent: To recognise the Cost of Disability as an allowable expense, and to revise the Burden of Illness Questionnaire to capture disability related expenses within the medical card application process
Details: Emailed PCRS department in HSE to request discussion on medical card eligibility
Intent: addition of medicine to list of medicines that pharmacists can prescribe.
Details: pharmacy prescribing
Intent: Engage with relevant stakeholders regarding a new Framework Agreement, highlighting the importance of the generic, biosimilar and off-patent medicines industry and the critical role it plays in delivering affordable and vital medicines for Irish patients.
Details: Meeting with relevant Departmental stakeholders regarding a new Framework Agreement for the Pricing and Supply of Medicines.
