Colm Burke

Intent: Swift implementation of SMA and SCID in NBS bloodspot screening programme

Details: Rare diseases and newborn screening of babies

Intent: That HIQA be brought before the Health Committee

Details: Failures in care of older people in long term residential care

Intent: To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.

Details: Rare Disease Policy in Ireland

Intent: Highlighting MSD's footprint in Ireland and raising awareness of key health policy priorities

Details: Strategic Operations in Ireland & Healthcare Priorities

Intent: To raise awareness of the challenges associated with diagnosing and treating Pulmonary Arterial Hypertension in Ireland

Details: Pulmonary Arterial Hypertension Awareness

Intent: That only professions who have statutory regulation should be designated as Mental Health Professions.The provisions under Part 3 Chapter 3 - Consent to Treatment (Involuntary Admissions) of the Bill, should be deleted. The criteria for involuntary admission and treatment should be the same and thus the admission order should become an admission and treatment order. That Risk criteria in Section 12 (1) (a) should be removed. ::the requirement for a psychosocial assessment should be removed from Section 22 and Sections 37. Sections 179 & 181 regarding regulations of care plans should be removed from the legislation. The Mental Health Commission instead should be tasked with developing clinical guidelines based on international best evidence. the act should establish a 24 hour Administration office under the HSE that is responsible for adminstrative functions.::When inspecting Mental Health Services, the Mental Health Commission should assess the budget allocation received by that ser

Details: Mental Health Bill

Intent: Inclusion of rare disease topics on schedule for Health Committee meetings.

Details: Request to prioritise rare diseases for discussion at Health Committee meetings

Intent: Raise awareness about Explorium's successful visitor numbers in one year since reopening, new programmes and initiatives planned in the coming months, and to highlight Explorium's potential as a national resource.

Details: Letter requesting a meeting to highlight Explorium’s positive role in science education for children and young people and its potential as a national resource.

Intent: Inclusion of rare diseases as a priority for Ireland to showcase during Ireland's EU Presidency in 2026.

Details: Seeking to highlight rare diseases during Ireland's EU Presidency in 2026 with an official event during the presidency

Intent: That the Government and MEPs must honour their commitments to stand up for farmers and defend their interests by opposing the current Mercosur trade deal.::To discuss farmers' concerns with the Minister for Foreign Affairs::To reiterate strong opposition to the Mercosur agreement in its current form. The beef industry in Ireland supports 90,000 farmers and around 25,000 jobs and is critical to the rural economy. There are very strong concerns about the impact the EU-Mercosur trade agreement would have on the viability of some 90,000 families.::That, while it is often argued that an additional 99,000t of beef from the Mercosur block countries would represent only 1-2% of the EU beef market, this statistic is in fact very misleading. The high value EU steak market (fillet, striploin, and cube) will be targeted by Mercosur beef exporters and will impact EU producers' ability to achieve a positive return on the carcass. 30% of the value of the carcass is contained within the yield of high

Details: Mercosur Trade Deal