Intent: To discuss the ‘Cancer Dashboard for Ireland’ developed by the Swedish Institute for Health Economics (IHE) with support from MSD which provides analysis of the state of cancer care in Ireland with focus on early detection, timely diagnosis, and equitable access to effective treatment.
Details: Cancer Outcomes in Ireland
Intent: Recommend the establishment of a multi-stakeholder advisory group in January 2026 to advance this and deliver on commitment laid out in Programme for Government
Details: Medicines Assessment and Reimbursement Process in Ireland
Intent: That HIQA be brought before the Health Committee
Details: Failures in care of older people in long term residential care
Intent: Funding to support the key priorities for disabled people as outlined in the ODG's Pre-Budget 2026 Submission
Details: Oireachtas Disability Group - Pre-Budget 2026 Campaign
Intent: To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.
Details: Rare Disease Policy in Ireland
Intent: That only professions who have statutory regulation should be designated as Mental Health Professions.The provisions under Part 3 Chapter 3 - Consent to Treatment (Involuntary Admissions) of the Bill, should be deleted. The criteria for involuntary admission and treatment should be the same and thus the admission order should become an admission and treatment order. That Risk criteria in Section 12 (1) (a) should be removed. ::the requirement for a psychosocial assessment should be removed from Section 22 and Sections 37. Sections 179 & 181 regarding regulations of care plans should be removed from the legislation. The Mental Health Commission instead should be tasked with developing clinical guidelines based on international best evidence. the act should establish a 24 hour Administration office under the HSE that is responsible for adminstrative functions.::When inspecting Mental Health Services, the Mental Health Commission should assess the budget allocation received by that ser
Details: Mental Health Bill
Intent: Inclusion of rare disease topics on schedule for Health Committee meetings.
Details: Request to prioritise rare diseases for discussion at Health Committee meetings
Intent: Inclusion of rare diseases as a priority for Ireland to showcase during Ireland's EU Presidency in 2026.
Details: Seeking to highlight rare diseases during Ireland's EU Presidency in 2026 with an official event during the presidency
Intent: To secure future funding for the NISIG Helpline, to maintain this crucial support for those in need of assistance particularly at times of great emotional stress.::NISIG are calling for a wider and more sufficiently funded public funding system for IVF including significantly increased funding for the fertility hubs nationwide::NISIG asks that eligibility and criteria for public funding for IVF are broad, equitable, inclusive and reflective of those who seek infertility treatment. This includes a review of the current criteria based on data from the last 2 years, along with areas such as funding for patients requiring PGT-M and PGT-SR, and additional cycles of IVF for couples with no children. Donor conception must be ready to roll out in conjunction with the establishment of the new Regulatory Authority. ::There is no provision for specific support by the State health services for those going through fertility treatment and NISIG receives no Government funding for the vital support s
Details: NISIG emailed members of the Oireachtas our 2026 pre-budget submission. Key asks in the pre-budget submission included funding our NISIG Helpline, a request for a wider and more sufficiently funded public funded IVF scheme. Also, that eligibility and criteria be broad, equitable, inclusive and refle, ...
Intent: To raise awareness of issues related to responsible dog ownership among renters, access to public transport for people with dogs and improving animal welfare in Ireland.
Details: Meeting to discuss dog welfare policy and control
