1 hour meeting of Oireachtas All Party Group on Rare Diseases meeting to discuss importance and reasoning for highlighting rare diseases during EU Presidency - MeetingInvitation to selected TDs & Senators to join a meeting discussing plans to request official rare disease event during EU Presidency. - EmailLetter sent to Ministers for Health requesting official event highlighting rare diseases during EU Presidency - copied to Tánaiste, Minister for Foreign Affairs and Trade, Minister of State at the Department of the Taoiseach, Minister for Further and Higher Education, Research, Innovation and Science, Minister for Enterprise, Tourism and Employment - Letter
Intent: To discuss the progress of the National Strategy for Accelerating Genetic and Genomic Medicine in Ireland, and to discuss how to expand the availability of genomic testing to patients.
Intent: Ireland to consider and support proposals for improving access to medicines in smaller EU markets from the European Association, EFPIA, and to support the position that such access can be improved without cutting Regulatory Data Protection IP rights.
Details: Proposed revision of EU General Pharmaceutical Legislation and Irish Government position on access to medicines in EU smaller countries/markets and intellectual property rights.
Intent: Supporting competitiveness as part of the EU pharmaceutical sector reforms and innovation in life sciences in Ireland.
Details: Engagement with Government, MEPs and public officials regarding the life-sciences sector in Ireland and the EU General Pharmaceutical Legislation (GPL) including two roundtable events.
Email from Alexander von Wildenrath Løvgreen, Associate Director, EU Government Affairs to two MEPs on the draft paper on the future of the EU biotechnology and biomanufacturing sector written by MEP Hildegard Bentele. - EmailTwo roundtable events/receptions held, one run by the Danish Embassy in Dublin on behalf of Novo Nordisk, in which DPOs were invited and in attendance and another event for RENEW MEPs in Brussels on European competitiveness hosted by Novo Nordisk. Nina T. Hovland also engaged with Minister for Finance Paschal Donohoe at a dinner hosted by EY. - Event / ReceptionMeeting
Intent: Appeal to Irish Government to support the exclusion of medical technologies (and inputs to medical technology products) from any reciprocal EU tariffs.
Details: Retaliatory Tariffs: Impact on healthcare in Europe
Intent: Invite stakeholders to the MFI breakfast briefing event, 'Digital Solutions for a greener industry', and seek to highlight the urgent need for transition to digital-first communication with healthcare professionals to reduce inefficiencies, environmental impact and rising costs.
Details: Correspondence to relevant stakeholders regarding MFI event 'Digital Solutions for a Greener Industry'.
