Pádraig O'Sullivan

Intent: Request that the Committee considers and discusses the concerns and takes corrective action urgently

Details: Wrote to the Joint Committee on Justice, Home Affairs and Migration to express urgent concern regarding the challenges faced by persons with disabilities living within the Direct Provision system.

Intent: Recommend the establishment of a multi-stakeholder advisory group in January 2026 to advance this and deliver on commitment laid out in Programme for Government

Details: Medicines Assessment and Reimbursement Process in Ireland

Intent: That HIQA be brought before the Health Committee

Details: Failures in care of older people in long term residential care

Intent: To find out when paediatric bone marrow transplant services will return in CHI at Crumlin.

Details: To ask TDs to submit a parliamentary question on the lack of paediatric bone marrow transplant currently available in Ireland

Intent: Discussion health policy that relates to combination therapies, rare diseases including orphan medicines and early access in the Irish healthcare systems

Details: Rare disease strategy

Intent: For the Deputies to support our ongoing campaign to add epilepsy to the CDMP and promote increased epilepsy management at community level.

Details: Met local TDs at an Epilepsy Ireland event highlighting why epilepsy should be added to the HSE's Chronic Disease Mangement Programme (CDMP)

Intent: Tacaíocht bhreise do TG4

Details: Ag lorg tacaíocht bhreise do TG4

Intent: To raise the profile of rare disease policy amongst Irish political stakeholders & seek updates on a range of rare disease policy matters.

Details: Rare Disease Policy in Ireland

Intent: To raise awareness of the challenges associated with diagnosing and treating Pulmonary Arterial Hypertension in Ireland

Details: Pulmonary Arterial Hypertension Awareness

Intent: Awareness raising and improving access to treatments for people with rare diseases.

Details: Rare Disease Policy