Rare Diseases Ireland
Intent: Reimbursement of Friedriech's ataxia drug Skyclarys
Details: Letter to HSE leadership re reimbursement of Skyclarys for people living with Freidriech's ataxia
No current committee memberships matched for this official.
Intent: Reimbursement of Friedriech's ataxia drug Skyclarys
Details: Letter to HSE leadership re reimbursement of Skyclarys for people living with Freidriech's ataxia
Intent: To seek information on where the annual HSE funding of the Irish Heart Foundation Patient Support Services will be sourced from.
Details: Irish Heart Foundation Patient Support Services.
Intent: Parkinson's Ireland would receive section 39 funding to operate a counselling service in 2027
Details: Wrote to the Minister for Disability and HSE REO regarding our business plan for section 39 funding for our dedicated counselling service
Intent: Ensure REO's are aware of the services we offer from our histology labs in Sandyford
Details: Histology Laboratory information to REO's
Intent: To inform the development of Ireland's next National Cancer Strategy
Details: Organising an event to launch a Cancer Dashboard for Ireland
Intent: Parkinson's Ireland would receive section 39 funding to operate a counselling service in 2026
Details: Parkinson's Ireland provided an updated memo to the HSE after our meeting with Minister Higgins
Intent: Increased funding to the unit to avert a looming crisis as consultants will not be accepting any new patients with CHD transitioning from paediatric care in CHI Crumlin from June 1st 2026.
Details: Under-funding of the Adult CHD Services in the Mater Hospital despite submission of successive five year business plans in the last decade
Intent: To inquire, via parliamentary question, regarding histopathology sampling from the GP referral pathway::To ask for additional information on a decision by which GPs could not submit histopathology samples for non-medical card/GP card holders.
Details: Histopathology services in the Dublin North East region.
Intent: Parkinson's Ireland would receive section 39 funding to operate a counselling service in 2026
Details: Wrote to the REO to lobby for the HSE to provide funding for Parkinson's Ireland to run a dedicated counselling service via the Dublin and North East Regional Health Forum .
Intent: That the relevant person would attend the conference.
Details: Invitations to FASD in Ireland Conference