Rare Diseases Ireland
Intent: Reimbursement of Friedriech's ataxia drug Skyclarys
Details: Letter to HSE leadership re reimbursement of Skyclarys for people living with Freidriech's ataxia
No current committee memberships matched for this official.
Intent: Reimbursement of Friedriech's ataxia drug Skyclarys
Details: Letter to HSE leadership re reimbursement of Skyclarys for people living with Freidriech's ataxia
Intent: To seek information on where the annual HSE funding of the Irish Heart Foundation Patient Support Services will be sourced from.
Details: Irish Heart Foundation Patient Support Services.
Intent: An additional €200,000 per annum in funding
Details: Increased annual operational funding from the HSE
Intent: Ensure REO's are aware of the services we offer from our histology labs in Sandyford
Details: Histology Laboratory information to REO's
Intent: Understanding of and support for the programme for government commitment to the roll-out of Autism One-Stop Shop / Community Support Hubs
Details: Engaged with public representatives on the roll-out of the Community Support Hub Model
Intent: To inform the development of Ireland's next National Cancer Strategy
Details: Organising an event to launch a Cancer Dashboard for Ireland
Intent: awareness of priorities for the region ahead of a workshop at AICIC26
Details: Assess laboratory priorites for West and North West
Intent: The agenda items for the meeting below;• Winter plan for region • Short stay contract beds• 2026 HSE regional priorities• 2026 NHI priorities • Dates for 2026 meetings The aim of the meeting was for NHI members in the West North West Region to work in collaboration with the HSE Regional Health Area of West North West on a number of issues mainly winter planning, discharges from hospital, short stay contract beds and NHI and HSE priorities for 2026.
Details: NHI met with REO West North West and the IHA Managers to discuss older person care for the region.
Intent: To secure an office space in in Mayo for our new Mayo Parkinson's Nurse to see patients in-person.
Details: Wrote to the REO for the HSE Region to request an office space for our incoming Mayo based Parkinson's Nurse
Intent: That the relevant person would attend the conference.
Details: Invitations to FASD in Ireland Conference